One year ago today my son, Nate was diagnosed with Type 1 diabetes. I would love to sit here and tell you that the year has flown by, his diabetes is under "control", and life with diabetes has become our "new normal". Sorry Folks - I can't do it.
As I sit here right now I am waiting for Nate's blood glucose level to come down from over 500. Yes - - you would think that after 1 year we would no longer see numbers like 500!! Today is one of those days that puts Type 1 Diabetes right back in perceptive for me.
We lost our Continuous Glucose Monitor Sensor and our Insulin Pump on the same night. This would be the definition of a BAD D DAY!!
The tears are flowing because it has been 1 year since Nate was diagnosed and I am not magically just OK with it. Things have gotten easier but I am still often sad about his diagnosis.
The triumph of the night is that I am here alone with my 3 children, I changed a DexCom (CGM) sensor, figured out that the canulla was no longer delivering insulin to Nate, changed a pod, delivered a corrective dose of insulin, checked for ketones and am now anxiously waiting for his bg to come back into range.
For the record for non-D-Peeps - - - this also means that I will get absolutely no sleep tonight. This high bg required a large correction which is not an ideal situation while Nate is sleeping. Therefor, because I just got the CGM calibrated and I have no idea how accurate it is going to be - - - I will be up! Checking, Checking and Checking on Nate for most of the night.
One year ago Nate's blood glucose was over 500 he was in DKA (diabetic ketoacidosis) and could have died.
Unfortunately, the numbers are hauntingly similar but the circumstances are so different. I know what to do, how to do it and will win this battle. I am in control of keeping my son alive and I will not let him down. Not tonight! God willing, not ever!
It feels strange but that is all I have - - -
I never, ever run out of things to say about D but my one year mark has me a bit speechless.
Here are some pictures of our journey over the last year - - -
I threw this together at the last minute because sometimes pictures like actions speak louder than words.