At our walk on Saturday we hooked up with the OmniPod staff as well as Nate's CDE, Mrs. Wonderful. So helpful in so many ways - - Nate's bg when we arrived was HIGH (that what the PDM told me - HIGH!!). So, it was nice to have his CDE and the OmniPod reps to help me through that little rough patch. :)
Side note: I've probably mentioned how much I love her (Nate's CDE) on my blog but I've actually meant to dedicate an entire post to her and her wonderfulness but I just haven't had a chance. I also have never asked her if I can use her name on my blog so I won't for today --- just in case.
Back to the story - We ran into Mrs. W at the OmniPod booth and she had some exciting news for us! Nate's a1c had dropped again!! She was excited to give us the news and we were excited that his a1c is now 7.3 and his alkaline phosphatase is back in range (yea - remember that Benign Transient Hyperphosphatasemia post).
All good news!
Now for the freaking out & Open and Honest.
Here are Nate's lab results. This is me opening up to you in hopes that you can help me ---
Are you ready ---- here is is . . . The good, the bad and the very ugly!
Labs Received(Specimen 100126782) 09/22/10 05:03 PM
Code Test Result Flag Unit Range
HBA1C Hemoglobin 7.3 High HBA1C 3.90-6.0
CH8/HEPLIP BASIC XXXXXXXX CH8/HEPLIP
NA Sodium 141 NA 135-148
K Potassium 3.9 K 3.5-5.3
CL Chloride 105 CL 95-110
CO2 Bicarbonate 25 CO2 22-31
GLU Glucose 98 GLU 60-100
BUN BUN 14.0 BUN 6-23
CREA Creatinine 0.3 Low CREA 0.5-1.4
ALB Albumin 4.6 ALB 3.4-5.0
CA Calcium 10.2 CA 8.5-10.5
TBIL Total 0.2 TBIL 0.0-1.2
DBIL Direct 0.0 DBIL 0.0-0.3
SGOT SGOT (AST) 51 High SGOT 0-37
SGPT SGPT (ALT) 26 SGPT 0-40
ALP Alkaline 305 High ALP 39-117
CHOL Cholesterol 146 CHOL < 200
TRIG Triglyceride 388 High TRIG < 150
HDL HDL - 25 Low HDL > 40
LDL LDL - 43 LDL < 130
C/HDL Cholesterol/H 5.8 High C/HDL 0.0-5.0
T4/T3U/TSH T4 / T3 U / XXXXXXXX T4/T3U/TSH
TSH / FTI
T4 T-4 7.0 T4 4.5-12.5
T3U T-3 Uptake 29.7 T3U 25-35
TSH TSH 1.9 TSH 0.30-4.50
T7 T-7 (FTI) 2.08 T7 1.20-4.30
So, there it is. Pretty freaking horrible. WTH is causing this?
For the record - Nate NEVER had a full blood work-up at Children's Hospital. Our new practice does it every 3-months. It's not fun but clearly the information is invaluable.
Here is the note that was attached to the lab results:
The labs show the alkaline phos level has dropped to the level it would be for a normal growing child!!!!
that is great!!
What is very surprising is the Triglycerides are very high. HDL is very low.
That is likely a hereditary problem.
We really want you guys to work with Mrs. Wonderful on dropping the level of simple carbs Nathan is eating.
That should help drop the triglycerides.
The 1st thing I did was call the office to make an appointment with Mrs. W but as most of you know our insurance for Nate runs out on Thursday. Getting into see someone so wonderful is not that easy. She's out this week. UGH!
So, I texted Mrs. W and asked her about getting in and then started the conversation about his cholesterol. This is the part where I get a little hurt (just my feelings - no bodily harm was done!).
Her text to me read:
We have to get rid of or really limit the enriched white flour foods and the sugary stuff. We need more whole wheat and fresh fruits and veggies. Do a wheat cereal for breakfast instead of pancakes and waffles. Limit the eggs to 1 or 2 per week because of the yolk.
Now remember we are texting - it's like email - you can't ever really tell the tone of of a text or an email.
I texted back:
Ugh! He's 2 not 82!! He does eat fruits and veggies! I just bought some oatmeal - wish me luck! When I make pancakes they are oatmeal base. Is yogurt ok? He eats it a lot.
I know he is 2 but no 2 year old needs to be eating that stuff everyday. It needs to be on a special occasion. It's not just a special diet just for him. It's for every kid. Past the age of 2 everyone should be on fat free dairy products. Yogurt is great! We just want it to be light most of the time to limit the cholesterol and fat.
Ok - so the waterworks started there. I love Mrs. W but this totally hurt my feelings and made me feel like the worst mom ever!! I know that if we could have gone in to discuss the situation it would be different but with the insurance issues right now it is just not an option. So, I cried. Called a fried - cried. Talked to Jim cried. Ok - I got a little mad too!! But then really started thinking about this situation. We don't eat poorly. Nate doesn't eat anything (in my opinion) that would cause this --- could it be the diabetes? Something else?
For the record - Mrs. W has been known to read my blog so I want her to know that I still love her very much but I did get my feelings hurt although I know it was not intentional on her part.
Here is an average day at the Houston House:
(most meals are for all 5 but sometimes Nate does get something a little different - not because of D but because he's 2)
Breakfast - Leggo Nutri Grain Waffle, Small dab of whipped cream instead of syrup and low-fat yogurt and sometimes 1/2 of a scrambled egg (why 1/2 --- because I eat the other 1/2 with a piece of toast). Up until about 2-months ago he ate the single grain baby oatmeal everyday for breakfast mixed with low-fat yogurt and either a piece of whole grain toast or a waffle. Today - I tried regular oatmeal which he refused so I made the baby cereal with yogurt and he ate it. No waffle. No egg.
With the whole grain waffle, 1/2 an egg and low fat yogurt we were getting little to no breakfast spike. Hello - - - we have been trying to conquer that spike for months! Today he spiked to 390 - WTF?!?!?!
Lunch - 1/2 of a peanut butter and jelly sandwich (Natural peanut butter and reduced sugar jelly on whole grain white - he won't eat wheat!!!) with either goldfish (the crackers not the ones that swim in a bowl) or wheat thins with a few slices of cheese and some grapes or banana. Sometimes a yogurt here too. He's obsessed with Yo-Yo!
Dinner - obviously varies a lot around here depending on if Jim is home or not but here are some examples. Grilled chicken with veggies, the kids always want fresh fruit - - grapes, apples or bananas and a starch. I'm not going to lie - Nate loves mac n' cheese but we don't eat it often --- hello crazy bg!! We eat fast food usually once a week -- mostly chick-fil-a but the occasional Happy Meal gets thrown in the mix too.
Snacks - crackers, goldfish, grapes, yogurt, cheese, smoothies, apples and YES, sometimes cookies, Scooby snacks (graham crackers) and peanut butter.
We love 'Noodle Soup' which is pure home grown and home canned tomato juice with a little salt, pepper, butter and shell pasta. We love pasta period! - - - here we go again with the Italian background again - Nate LOVES him some spaghetti and meatballs!!
I just don't think he eats enough of any one thing to make his cholesterol so HIGH! What do I know? I am having the girls tested this week to see if it is all 3 kids or just Nate. At my last check-up my cholesterol was normal. Jim doesn't 'do' doctors so I have no idea what his cholesterol looks like and I don't know his family history. Note to self - look into Jim's family history a little more!!
So there it is - - -
What are you thoughts. If you feel like being critical --- please do it nicely --- I'm a mother on the edge!
Ok - so I just banged out this post at record speed because I've got to go overhaul my pantry. While you are not judging my child's lab results - please do not judge any grammar, punctuation or spelling either. Thank you!