Tuesday, September 6, 2011
Super Sweet Sophie Update
10:36 PM
July was a tough month for Super Sweet Sophie. It was by far the sickest she has ever been. Here's what we were/are dealing with ---
Hematochezia
ESR Raised
Anemia
Anorexia
Ulcerative Colitis
Fatigue
Hypoalbuminemia
Yea - don't worry I had to google most of it too. They're just a bunch of fancy words that mean she felt like total poop (haha - get it).
Can you believe it's been almost 2 months since she was in the hospital?
I am happy to report that she is feeling MUCH better. MUCH, MUCH BETTER. She started kindergarten last month and has just loved every moment. She has gained 5lbs and happily tells me every day that her tummy does NOT hurt.
I would love to tell you that she is in remission but we currently STILL have her on steroids although we are trying to taper her off of them. She is also taking Azathioprine (ay za thye' oh preen) as her maintenance medication. The good news is that her hemoglobin is back up to 13 so no more Super Sleepy Sophie!
We go back to see her doctor next week and I hope to be able take her down another notch on the steroids and work towards getting her totally off within the next couple of weeks.
I want to thank everyone for all of your continued prayers, good thoughts and kind words. We feel so blessed to have so many people loving and praying for Ms. Sophie.
I also want to thank everyone that reached out to us, sent us emails, found support groups and got me in touch with other parents living with Crohn's and Ulcerative Colitis. You people are amazing!
Although many, many people have suggested eliminating food from her diet (gluten, dairy, refined sugar) or keeping her on a restricted diet (specific carbohydrate diet, anti-inflammatory diet) we have decided that at this time to just let her be a kid and eat what she likes. There are certainly foods that we avoid but she is usually the one now to eliminate them if they make her feel bad. We keep a food and poop journal (thanks to another Crohn's mom) --- don't be jealous! :)
We tried several things and for Sophie nothing has really helped except for medication. It was a hard decision but she is feeling better, has more energy and is back to her super sweet little self. In the end that is what is important to us right now.
Keeping calm and carrying on . . .
Hematochezia
ESR Raised
Anemia
Anorexia
Ulcerative Colitis
Fatigue
Hypoalbuminemia
Yea - don't worry I had to google most of it too. They're just a bunch of fancy words that mean she felt like total poop (haha - get it).
Can you believe it's been almost 2 months since she was in the hospital?
I am happy to report that she is feeling MUCH better. MUCH, MUCH BETTER. She started kindergarten last month and has just loved every moment. She has gained 5lbs and happily tells me every day that her tummy does NOT hurt.
![]() |
The Girls with their awesome principal - 1st Day of School |
I would love to tell you that she is in remission but we currently STILL have her on steroids although we are trying to taper her off of them. She is also taking Azathioprine (ay za thye' oh preen) as her maintenance medication. The good news is that her hemoglobin is back up to 13 so no more Super Sleepy Sophie!
We go back to see her doctor next week and I hope to be able take her down another notch on the steroids and work towards getting her totally off within the next couple of weeks.
I want to thank everyone for all of your continued prayers, good thoughts and kind words. We feel so blessed to have so many people loving and praying for Ms. Sophie.
I also want to thank everyone that reached out to us, sent us emails, found support groups and got me in touch with other parents living with Crohn's and Ulcerative Colitis. You people are amazing!
Although many, many people have suggested eliminating food from her diet (gluten, dairy, refined sugar) or keeping her on a restricted diet (specific carbohydrate diet, anti-inflammatory diet) we have decided that at this time to just let her be a kid and eat what she likes. There are certainly foods that we avoid but she is usually the one now to eliminate them if they make her feel bad. We keep a food and poop journal (thanks to another Crohn's mom) --- don't be jealous! :)
We tried several things and for Sophie nothing has really helped except for medication. It was a hard decision but she is feeling better, has more energy and is back to her super sweet little self. In the end that is what is important to us right now.
Keeping calm and carrying on . . .

Sunday, September 4, 2011
iPhone Upload - 9/4
10:29 PM
Thursday, September 1, 2011
Diabetes Art Day - 2011
6:14 PM
September 1st - that's today!! It's also Diabetes Art Day - - -
Lee Ann, Diabetes Blogger and Art Therapist from The Butter Compartment got the DOC buzzing about D art and here we are again. The 2nd annual Diabetes Art Day submissions from HWHAP ---
From the girls (Nate decided not to participate this year - I was ok with that):
From me:

Subscribe to:
Posts
(Atom)
Just a Mom
I am NOT a doctor, nor do I play one on this blog.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.

Powered by Blogger.

My Blog List
-
Le soleil6 days ago
-
-
-
A Writer's Pen3 months ago
-
Diaversary5 months ago
-
I'm Always Right5 months ago
-
MDMV6 months ago
-
Kitchen Garden11 months ago
-
The Shift...11 months ago
-
10 years ago...1 year ago
-
Keystone First denial - I win1 year ago
-
-
-
-
Pod Hockey2 years ago
-
#DAM Drinking Plan2 years ago
-
10th grade2 years ago
-
-
-
The gun in my basement.3 years ago
-
Chronic Illness and Mental Health…3 years ago
-
-
-
Happy Easter 20165 years ago
-
-
-
Hope5 years ago
-
10 Years Ago Today5 years ago
-
UPDATES UPDATES UPDATES5 years ago
-
-
Diabetes Resolutions6 years ago
-
-
-
Worry...Worry...WORRY!6 years ago
-
-
-
-
Goodbye Sweet Friend7 years ago
-
For You, My Friend7 years ago
-
-
For Shamae7 years ago
-
Karen Jensen, RD7 years ago
-
Callan7 years ago
-
-
3 Years7 years ago
-
Email Subscriptions.7 years ago
-
-
-
-
-
Cross Talk Radio Show Link :)8 years ago
-
Back to School - Our Lunch Time Dilemma8 years ago
-
-
How To Manage Your Stockpile8 years ago
-
Russian Custard8 years ago
-
Diabetes Tourettes8 years ago
-
A story8 years ago
-
10 years9 years ago
-
-
I’m Just Not That Into This.9 years ago
-
CBS 5... Shame On You!9 years ago
-
-
totally random9 years ago
-
I think I can breath again9 years ago
-
-
Weekend Meme9 years ago
-
Think positive...9 years ago
-
Lipoatrophy9 years ago
-
-
-
Weekly Sugar Bolus10 years ago
-
-
Missing.....10 years ago
-
I'm BACK!10 years ago
-
-
SleepOVERS!!!11 years ago
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
