Diabetes? Most likely!
It's hard! It's hard! It's hard! It is SO hard! No one told me it would be this hard!
We are having awful, terrible, sickening numbers. All over the place - from 523 to 47. I know it hurts. It feels bad and it must be awful. Why can't I just take it away? I would trade places if I could. Oh, how I wish I could take his place.
Children's Hospital Dallas Endocrinology? YES!
Here is what Nate looks like to Children's Hospital:
Sometimes they see him like this:
And to CAREMARK:
Here's what he is to me:
He's my son. My precious, precious boy. He is just a baby and he needs help. I need help. Our family needs help. Why must it be so difficult to help us? He is not bar code, a dx date, or an ID number. He is my son!
I'm so frustrated with Children's and their Certified Diabetes Educators (CDE). There are so many of them and none of them seem to care that Nate is 19-months old. Nobody there actually knows who Nathan James Houston is - to them he is just a bar code and a diagnosis date! We get a message from one CDE one week and the very next week another CDE tells us we should never have done the very thing that the last CDE told us to do. REALLY?
You cannot treat a baby the same way you treat a child, a teenager or a young adult. It doesn't work. I cannot force Nate to eat, I cannot get him to pee on a test strip and I will not continue to let his bg be so out of control! I cannot figure out his insulin requirements on my own and all I get is frustration when I ask for help. Is it to much to ask for personal care these days? Is Children's so big that they no longer care about the individual patient? Is it really all about the bottom line?
It is hard to have a sick child. To know that he will never be better. Diabetes will always be with him. It is hard to be a parent of a sick child and to have to deal with the bureaucracy of insurance, hospital billing and RX limitations.
If only we could humanize these companies - if they could only see our children as children and not bar codes and ID numbers.
Nathan James Houston
This is my son, Nathan. He has Type 1 Diabetes and he needs a little bit of help and a lot of compassion.
Is that really so much to ask?
Today has been a hard D day. I am hoping for a better tomorrow.
Here is what Nate feels like when his bg is low -Mild hypoglycemia
Symptoms of mild low blood sugar usually occur when blood sugar falls below 70 mg/dL and may include:
- Extreme hunger.
- Feeling nervous or jittery.
- Cold, clammy, wet skin and/or excessive sweating not caused by exercise.
- A rapid heartbeat (tachycardia).
- Numbness or tingling of the fingertips or lips.
If blood sugar continues to fall, the nervous system will be affected. Symptoms usually occur when the blood sugar falls below 55 mg/dL and may include:
- Mood changes, such as irritability, anxiety, restlessness, or anger.
- Confusion, difficulty in thinking, or inability to concentrate.
- Blurred vision, dizziness, or headache.
- Weakness, lack of energy.
- Poor coordination.
- Difficulty walking or talking, such as staggering or slurred speech.
- Fatigue, lethargy, or drowsiness.
The symptoms of severe low blood sugar develop when blood sugar falls below 35 mg/dL to 40 mg/dL and may include:
- Seizures or convulsions.
- Loss of consciousness, coma.
- Low body temperature (hypothermia).
And when his bg is high -
- abdominal pain
- nausea and/or vomiting
- fruity breath odor
- rapid, deep breathing
- unconsciousness ("diabetic coma")