Tuesday, January 12, 2010

A Little Bit Longer


As Joanne mentioned in her post we attended the JDRF  Awards Dinner last week with the Cunha family.  We are so blessed to have another family in the area with a T1 child that we can hang out with and feel totally normal with them.  Not that we are not normal, it's just that having a T1 child does make you stand out a little bit when you have to do a BG check or insulin shot in public.  Anyway, they were kind enough to take some pictures during the evening and here they are . . .


Elise and Nate were the youngest T1 children on stage.  :-(




All of the children held up sings that read 'I Research!'
It was SO cute!!

We heard some encouraging information about research being sponsored by the JDRF so I am already gearing up for the 2010 Walk for a Cure!!  The researcher also played a song that has stuck with me since that evening.  I'm probably way behind the time but I've never been a huge Jonas Bros. fan - - I save my school girl crushes for Edward Cullen and Justin Timberlake!!  :-)

Anyway, the song was written by Nick Jonas who was dx T1 in 2005.  I thought I would post the words here because as a mom of a T1 it is so encouraging to see someone like Nick Jonas sing about his diagnosis and educate others about Type 1 Diabetes.  He appears to be a great role model for other Type 1 children.

 A Little Bit Longer - Jonas Brothers

Got the news today doctor said I had to stay
A little bit longer and I'll be fine
When I thought it'd all been done
When I thought it'd all been said
A little bit longer and I'll be fine

But you don't know what you got until it's gone
And you don't know what it's like to feel so low
And every time you smile, you laugh, you glow
You don't even know, know, know
You don't even know

All this time goes by, still no reason why
A little bit longer and I'll be fine
Waiting on a cure but none of them are sure
A little bit longer and I'll be fine
But you don't know what you got until it's gone

And you don't know what it's like to feel so low
And every time you smile, you laugh, you glow
You don't even know, know, know
You don't even know, know, know
You don't even know, know, know

But you don't know what you got until it's gone
And you don't know what it's like to feel so low, yeah
And every time you smile, you laugh, you glow
You don't even know, yeah, whoa, yeah
You don't even know

So I'll wait 'til kingdom come
All the highs and lows are gone
A little bit longer and I'll be fine
I'll be fine

7 comments:

Meri said...

No fair! You made me cry. I've read this song before...I wasn't planning on crying...but here I am.

Pretty fitting, I started the day crying from a blog, and I'll end my day the same. Such is a diabetic life.

phonelady said...

yes that really explains the diabetic life . Oh you and Joanne have the cutest kids .

Tracy said...

I have never actually heard/read all of the words to that song either! Thanks for making me cry too. :)

It is so nice having other families to go through all of this with.

Hallie said...

Love it! I have it on my blog playlist right now!
Love the pics. too! What cuties!!!

Joanne said...

I totally forgot to email you the pictures. I'll try to do it this afternoon when Elise is napping.
Sorry!

Amy said...

Great post..so glad you and Joanne live near each other! That song makes me cry....EVERYTIME!

Shamae said...

Love that song. I don't know if you ever saw it but I made Syd's walk vid to that song this year. You can see it here http://www.youtube.com/watch?v=YI1osvwL2ec It still makes me all teary. I hate this disease. I hate that it looks as though Morgan is developing it. I hate that our out of pocket money to keep syd ALIVE is DOUBLING this year becuase my hub's insurance plan changed. I hate it. But, it's also allowed me to meet wonderful, beautiful friends like you. Thanks for letting me "in." Hugs!