with his type of insulin therapy there is one thing we can try. When are you giving him his morning Humalog? Are you giving it to him before he eats or after he eats? If you are giving it to him before he eats, you can try giving it to him 15 minutes prior to him starting to eat and maybe the peak of the Humalog and food will match up closer and result in better mid-morning blood sugars. If you are giving it to him after he eats, maybe working toward giving it to him prior to him eating. On Lantus therapy or pump therapy we will be able to address them a bit better. I feel on Lantus, kiddos don't have to wait for their background insulin to peak because its constant for 24 hours and therefore would be a better match in the mid-morning. On pump therapy, we can program windows for different amounts of insulin at different times of the day to help match what his body needs.
Im so happy that you got this kind of response finally . I hope it all goes the way you need it to go . I was at the drs yesterday only to be told the dr left on an er emergency and so I have to go back in two wks to up my supply , so for now out of pocket again !!! Not a nice feeling at all yeah I feel like a bar code too . talk to you soon so happy for you and nate .
Well...she definitely took some time to respond to you...which is GOOD! Sometimes we just have to extremely direct and in their face before they do anything! Sad..but true.
Jada's high time of the day is usually midmorning. And her breakfast shot is what really seems to affect those numbers. Her insulin to carb ratio is 1:10 at breakfast as compared to 1:35 at other meal times. Her liver just seems to spill an extra amount of sugar in the mornings (its called the dawn effect). We also try to have her wait at least 10 minutes after her shot before she eats her breakfast...that helps a ton.
I know you use NPH and I never have..so it does make things different. I've loved having Jada on Lantus...it doesn't peak....and we can pretty flexible with her eating.
Hang in there....you are doing fabulous with Nate. I can't imagine how you are feeling after all you've been through in the last couple of weeks. Lots of hugs and prayers to you!
Maybe you can just try and email Beth when you need something. It can't hurt to try right?
Also, good for you for getting their attention. Sometimes you just need to remind them that they can't treat people like numbers.
Hang in there... today is a better day :)
I like that she made an effort...even though she didn't have much help to suggest. It is no fun to yoyo up and down, J was a very grumpy baby when he was on NPH. (Although...it could have been the fact that he was two at the time.:)
I'm glad you got a response. Keep pecking at them...hopefully they will wake up to the fact that Nate needs more care then their typical endo patient.
Thinking of you! I know it is so hard. I know.
So glad you got a response from them! They are beginning to hear you. I think that's progress and it must feel good to tell them how you feel.
The numbers game.. ahhhhh.... my gal is 7 and is on Novolog as her bolus and Lantus at night time. I do appreciate the Lantus in her life, I think it provides a steady stream for her as background 'music' so to speak.
I hope you get to have one CDE and care team and that they hear you. I think this is progress so far.
Hoping you get through this rough patch and have some smooth sailing soon,
What a great note from a CDE :) We have one CDE that we email back and forth with and when we go to the Endo, we always request to see her before we leave if she's not our CDE when we get there. Usually if she sees our name on the schedule, then she will wiggle her way in ;) I love having the contact with ONE person instead of 5 different people calling me with pump setting changes.
Also, a book you may want to consider buying - "Pumping Insulin". We got it from another D-friend when Kacey was in the pump process and it's a GREAT manual!
Nate looks like he did well with the pod :) Good luck as you journey forward. You're gonna LOVE the pump!!
I know this is old but I just want to say that I love Beth! She has been so helpful, and believe me, some of them have not. I don't know why they don't assign the CDE's a caseload. It felt like for the first couple months I was calling every few days and having to re-explain everything that had happened over the last week. It makes no sense.
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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