Wednesday, January 13, 2010

I can't find the MIDDLE

I am so frustrated I could scream!  No matter how hard we try, no matter what we do we just cannot seem to get Nate into those 'middle' numbers. 

Here's a good example -

January 9th
1:30 AM - 89 treated with 10g of carbs IOB
7:00 AM - 108 Yippeee
8:45 AM - 88 15g for snack time
10:30 AM - 55 AWESOME!
2:00 PM - 221 10g snack
4:00 PM - 63
6:30 PM - 79


 January 11th
1:00 AM - 99 (treated with 7 carbs - lots of IOB)
7:00 AM - 215
9:15 AM - 240
10:31 AM - 40 - Really?  WTH?
10:54 AM - 188 after 15g of carbs
1:51 PM - 225
3:00 PM - 222

Today
1:30 AM - 259
6:47 AM - 270
9:00 AM - 266
10:35 AM - 212
11:20 AM - 50

I'm too tired to go get the meter to get the numbers for the rest of the day! They were all in the 200's.

Nate is on a constant carbohydrate diet which is counting carbohydrates in portion sizes called carb choices and eating the same number of carb choices at each meal.  Currently, he eats 30-35 carbs at each meal and 15-20 carbs at snack.  Now obviously being a 1 year old if he doesn't want to eat 15 carbs at snack there is really not much I can do about it.  I am not going to force him to eat because then we both just end of crying!

 Nate's schedule goes a little something like this . . 

7a - Check BG, Eat 30-35g and Inject H3, N3
9a - Check BG, Eat 15-20g
11a - Check BG, Eat 30-35g, Correct if necessarry
12p - NAP
3p - Check BG, Eat 15-20g
5p - Check BG, Eat 30-35g, Inject H1
7p - Check BG, Eat 15-20g, Inject N0.5 (just reduced from N1 due to lows at night)
130a - Check BG and then depending on that # do it again 1t 2:20 or 3:00

I just want to be in the middle!  Why can't we get there?  What are we doing to him?  I feel so bad - all of these highs and lows make him feel so lousy and don't even get me started thinking about what they are doing to hit little bitty organs!!

I can't figure out what is peaking when and why and just wish today that I didn't have to do it!
Poor Nate.
Poor Me.
Poor everyone dealing with the D.

11 comments:

Megann said...

Honey, I'm going to tell you this because I was a mom with a T1 one year old too. THIS IS NORMAL! All the roller coaster numbers in one day? Yep, it's normal. Even with a pump. I don't know why either. Young age? Growth spurts? We don't need to know. We don't need to think about what's happening to their organs. Nate and Lainey are going to live LONG lives regardless. All that matters is that we check, count, treat, or dose. Everything will be okay.
Love ya Lady! You're a great mom and a great "nurse" for Nate. He's so lucky to have you.

Meri said...

Looks like his breakfast H might too strong? N is so unpredictable...you will be able to adjust better on the pump.

But Megann is right, d is stupid no matter what the first year. You never know when Nate's little pancreas will sputter. You need to know what a great job you are doing! Constant checking and correcting is all we can do. You've been asked to run a marathon you never trained for...and you are rockin it!

Lora said...

It's never easy, but it does get easier. Dont stress to much about it. 200's may not be where you want him, but it way better than where he was. You will figure it out.

Just remember... You are a phenomenal woman, a beautiful mother, doing an extraordinary job, making things happen for those you love, and although you might not always feel it, you are loved and appreciated!!♥

phonelady said...

Yep gotta second the other ladies . You just cant be able to do it all . You are a great mom and you are loved and appreciated . You will get it eventually and they will survive .

:) Tracie said...

It will take time, but it will get easier! I never believed it either at first, but it really does.

I feel that I'd rather have Jessi a little high and try to figure things out, than risk the lows and have to deal with the unthinkable. We've steared away from using the emergency shot for 8 years, and I don't plan to start using it anytime soon either!
The thing about this disease.....it is unpredictable. (besides sucking) You can eat the exact same thing every day, and get different results each time!!

Try not to focus on "chasing numbers". That was our problem when Jessi was first diagnosed and for a long time after that, even sometimes still. Check when you need to, and the occasional 'not right' moments and just dose/correct. Easier said than done, I know, but just deal each day as it comes and know you are doing the best you know how right now. :)

Amy said...

Wow Laura...that all just seems so confusing to me!!! Jada was diagnosed just before the age of 3 and they put her on the same kind of diet for about the first 8 weeks...then we went to an insulin/carb ratio and it was so much easier. We've only ever worked with Novolog and Lantus...they kept it as simple as possible for us and Jada did so well. Since diagnosis, she typically gets 3 shots a day unless she gets too high and won't come down and then I'll correct.
I'm so sorry your feeling the pressure of this disease! It's so tough..hang in there....it sounds like you may be pumping soon and I'll bet you will LOVE the flexibility...as will I when Jada starts pumping!!!
Hang in there- your doing great!

Shamae said...

Oh hugs!! I'm sorry I'm a bad blogger friend these days. I'm sorry I can't be there to hug you in person but know you have lots of cyber hugs coming your way! Text me anytime you need to vent! I don't even mind middle of the night texts...honestly I don't. I've had many middle of the night times when I want to talk but can't cause of the time. Call or text ANYTIME and I MEAN that with my WHOLE ENTIRE HEART! I might not hear a text but I will get it and will respond. Promise! Hugs girly!

Joanne said...

When you find the middle, can you draw me a map so I can get there too?

Sorry things have been so tough. Sorry I've been MIA too. I've been meaning to call, but... you know how life is.

We need to talk SOON!

Mike LeBlanc said...

Hang in there Laura... You're doing great!

In my opinion it would be a bit better with a pump. My daughter was diagnosed at 2.5 and on her pump at 3.5 so I don't have any experience with a 1 yr old. Now Adele is 9 and we can reason with her. I would imagine that it is quite a nightmare to have a 1 yr old NEED to eat a certain amount of carbs, with the pump you could get away from this.

Again, hang in there, it will get better.

M

Wendy said...

High. Low.

I don't remember a middle for about 2 years.

Keep your chin up...and, remember, we're cheering for you!!!!

alix said...

Sorry to hear about chasing numbers. It is tiring.
You are such an awesome mama and work so very hard at doing your best and it shows. Cry when you need to, laugh out loud, there is always light at the end of the tunnel.
I am proud of you. Give yourself a big hug from me!!!