1) Vet Wrap - we use this to secure Nate's OmniPod around his arm so that it doesn't get knocked off. $2.00 per roll.
2) FreeStyle Flash Meter - you can never have too many meters around the house! Usually can get these free because the companies that make them make their money off of the test strips not the meters.
3) Glucagon (kit) Glucagon is used to treat insulin coma or insulin reaction resulting from severe hypoglycemia (low blood sugar). Glucagon is used in emergency situations when the patient is unconscious. Within the glucagon kit is a vial of powdered glucagon and a syringe filled with liquid (diluent). The dose is prepared immediately before injection. We have 1 in the kitchen, 1 with the D supplies and we have 1 with us in Nate's bag at all times. The cost for the 3 kits is approximately $255.00 - - - they expire after 1 year.
4) BD Ultra Fine Syringes for insulin injections. I think these cost about $20 per box.
5) OmniPod Personal Diabetes Manager (PDM) - this is what we test Nate's blood sugar on and dose all of his insulin. It control every aspect of Nate's insulin pump. This is our back-up PDM in the rare case our current PDM malfunctions we have a back-up to keep us rolling. Ehhhh . . . I really don't remember - - -I think this costs about $500 or $600. Insurance paid 100% of Nate's OmniPod but they do not pay for an extra PDM.
6) Precision Xtra Blood Ketone Strips - we test Nate for ketones when his bg goes above 250, if he is sick or shows any sign of DKA. These little strips are like buying gold - - - the cost is about $50.00 for a box of 10 and our insurance does not cover these. The boxes that we do have were given to us by a very nice CDE at Children's Medical Center of Dallas.
7) Accu-Check MultiClix Lancets - these are what we use to prick Nate's finger to draw blood for his bg checks. $73.27 for a 3 month supply(we currently pay about $17).
8) OmniPod Pods - the Pod holds and delivers Nate's insulin it has adhesive so we can apply it almost anywhere on his body. Obviously from all of my previous post - - - we prefer to apply it to his bum area. We also use his arm, leg and back. We change Nate's pod every 2-3 days. Each pod is $30 -- we order 5 boxes of 10 at a time and pray that they will last 3 months until the next shipment!!
9) FreeStyle Test Strips - these are the strips that go into the FreeStyle meter or the OmniPod PDM to test Nate's bg. These little babies cost about $1 each. We test Nate's bg anywhere from 10-14 times per day. A 3-month supply costs $942.00 (we currently pay $300).
10) Alcohol Wipes - we keep plenty of these on hand to clean Nate's fingers before a bg check and also to clean the area where we will apply his pod during a site change. $2.00 per box.
11) Johnson & Johnson Baby Oil - we sometime use this to remove the adhesive from Nate's pods on site change days. $5.00
12) Target Brand Rubbing Alcohol - also used to clean Nate's fingers and sites for pods. $2.50
13) Smith & Nephew Skin Prep Wipes - we prefer to use these more than the alcohol wipes to clean the site for Nate's pod. It has a little stick to it and helps the pod stay on better. $12 for a box of 50.
14) Smith & Nephew Uni-Solve - we prefer to use this to help remove Nate's pods. It helps remove the adhesive and loosen the pod before we take it off.
15) 3m Tegaderm - sometimes used to place over Nate's pod to keep it firmly in place. $10 for a box of 50
16) Miscellaneous Diabetes Supplies are kept in this little 2 drawer cabinet.
17) Pacifier Carrier - I use this little case to keep Nate's insulin in when we travel.
18) NOT SHOWN - Nate's insulin. We have insulin in the fridge and in his bag. We must keep it with us at ALL TIMES. Insulin keeps Nate alive. It costs about $85 per vial. We use 2 vials per month.
And I cannot forget out latest addition . . . DEXCOM!!! (Not pictured above because I've been working on this post for what feels like forever and Dex just came on Friday)
Our insurance paid 100% but I believe the cost is $800 for the receiver & transmitter and $250 for a months supply of sensors (4 sensors).
and here is a picture of Nate wearing his new CGM (I did the insertion while he was sleeping)
Right now we are covered for most of the supplies listed above on a COBRA group plan through Jim's previous employer. Our coverage will expire on 9/30/10. Because Jim is self-employed we no longer qualify for a group plan so I've been calling around and trying to get our family covered on an individual plan. Wow - the reality of having 2 chronically ill children while searching for insurance coverage is like a huge punch right in the gut.
The same company that currently covers our family under a group plan scoffed at the thought of covering my children under an individual plan. In 3 short months my family will lose our insurance and the ability to keep our son alive and our daughter's disease comfortably under control.
We do have a few options -
The Texas High Risk pool is available for our children at the cost of approximately $450 per child per month.
CHIP - Children's Medicaid is available if we qualify. So, basically if we stop working our kids will be covered at a lower rate through Medicaid.
ObamaCare or Pre-Existing Condition Insurance Plan (PCIP) - we are still waiting to find out more details but the cost is supposed to be 1/2 the cost of the TX high risk pool insurance. Unfortunately, everything I have read says that you must be uninsured for 6 months before you can qualify. Huh? Why?
I will continue to document our journey on finding affordable health care coverage for our children. It is a frustrating process but I am up to the challenge!!