I know what you are thinking . . . Really, Laura - - - another walk?
I've struggled with this for a while. When Nate was diagnosed with type 1 diabetes the JDRF was there as soon as we got out of the hospital. The walk was just 2 weeks after his diagnosis and I needed to be around others . . . others that understood what I was feeling.
Less than a year later our Super Sweet Sophie was diagnosed with Ulcerative Colitis. Another devastating blow to the Houston family. At that point I just picked up the pieces of my broken heart, smashed them back together and carried on. What choice did I have? My daughter needed me and I would not let her down. We started a treatment plan right away and Sophie almost immediately went into remission. I had heard that remission could last for months - even years and I was hopeful that would be the case for Sophie.
Sadly, that is not how it played out. Sophie started having symptoms again in August so we started her back on steroids to give her some fast relief but again the relief would not last.
The best way for me to describe Sophie's symptoms to you is for you to think about your little one having the worst stomach bug that they have ever had . . . EVER . . . with every symptom you can imagine. Vomiting, diarrhea, sever intestinal cramping, loss of appetite, lethargic, constant stomach pain . . . just to name a few off of the top of my head. And the worst part . . . it NEVER goes away. EVER.
Sophie's body weight has dropped from the 50th percentile down to the 5th percentile and she has repeatedly been forced to endure harsh rounds of steroids to help her little body from hurting so much. Last week she made a wish . . . her wish was for her tummy not to hurt anymore. What a heartbreaking wish for a 5 year old little girl. Most girls her age are wishing for the latest Barbie doll or Disney DVD but Sophie just wants her UC to go away.
Last year I threw myself into raising money for JDRF and with the help of my friends and family we were able to raise $12,000.
But what about Sophie? She needs a cure too.
So, this year we are participating in the 2011 Take Steps for Crohn's and Colitis. I am looking forward to raising money and awareness for Crohn's and Colitis but I am also looking forward to meeting families like ours living with UC in a small child.
I don't have the energy or the friend base left after just raising so much for JDRF to raise $12,000 this year but I am thinking about alternating between the 2 charities each year. We will still walk for each every year but maybe really fund-raise for just one a year. Good grief . . . does anyone have any suggestions on balancing it all? Do you have more than one charity that you raise funds for each year or do you switch every other year. I would love to hear some thoughts/suggestions.
I have found a wonderful online community for diabetes but I am lacking the UC support that I so desperately need. I'm hoping that becoming active in our local CCFA chapter will help me find what I am needing/lacking.
I'm aware that times are hard --- money is tight --- and oh yea . . . I was just begging you for money 6-months ago but if you would like to donate to Super Sweet Sophie our fund-raising page link is below and we would really appreciate any amount you can donate. Also, even if you don't donate we would love for you to walk with us on May 14th --- There will be food, music, kid's activities and just an all around very family friendly event!! It should be fun! :)