Monday, March 29, 2010

OmniPod Tips and Tricks

Ok, so we have only been using the OmniPod for a month so I really do not have that many tips and tricks but my last post received a lot of questions that I will attempt to answer here.

* We do decorate Nate's pods or as we like to call it "Pimp the Pod" with stickers but they often come off in the tub.  So, we just add another sticker after bath time.  Stickers are fun anytime!! The stickers that last the longest are the clear plastic kind or the non-paper type.  

* We always change Nate's pod after bath time so it has a chance to soak before site change.  We then use Uni-Solve (Smith&Nephew) to help remove the rest of the adhesive before we pull it off.  We tried baby oil and it did nothing for us but I know that it does work for others.

* Nate has super sensitive skin so currently before we place the pod we clean his skin with Skin-Prep (Smith&Nephew).  It helps keep the pod in place and also protects his skin from all of the adhesive.  Some people use an alcohol wipe but Nate's skin is too sensitive for that. 

* Nate's correction factor on the OmniPod is 1:300.  We started him at 1:200 but increased it to 1:300 about 2 weeks ago.  It is totally an option on the OmniPod. 


* OmniPod does have an Insulin On Board (IOB) feature but it calculates the IOB differently than other pumps.  The OmniPod calculates the IOB from the correction insulin instead of from correction and bolus insulin.  This totally works for us but does not work for everybody so I am not going to debate the IOB issue on my blog.  We love it.  Some people hate it. Some people just don't know anything about it!  :-)
My suggestion would be to speak with an Insulet representative to get the true facts about IOB and if it will work for your needs.


Insulet's definition:
Insulin on board (active insulin)
The amount of insulin that is still active in the body from a previous correction bolus dose. The amount of time insulin remains “on board” or active depends on each individual’s duration of insulin action. Talk with your healthcare provider to determine your duration of insulin action. The OmniPod System continually calculates the IOB to help prevent stacking of correction bolus doses, which is a major cause of hypoglycemia. 

* We currently have Nate's PDM set so that his IOB stays active for 5 hours. 



* The Reverse Correction is turned on for Nate's pod.  This is a feature that I love and feel like really keeps Nate from dropping to low. 

Definition:
Reverse correction (negative correction)
Using an individual’s correction factor (sensitivity factor), the reverse correction is a calculation that reduces a portion of a meal bolus dose when the patient’s blood glucose level is below their blood glucose target. This feature is an option of the PDM, which should be turned on or off according to the advice of a healthcare provider.

*  Nate is only 21-months so he does not have huge insulin needs.  His basal rates change throughout the day and the night so we love all of the different basal rates available. Here are his current settings:



* My most important tip is for site changes!  I actually got the idea from Tracy and her brave boy, Zane. We give Nate a Dum-Dum lollipop during site change and it makes the entire ordeal almost a non-issue.  Nice!


I know there are many out there that have been pumping and podding longer than we have that can offer more advice, tips and tricks but I just wanted to answer some of the questions that I received via email, comments and Facebook.

Sunday, March 28, 2010

OmniPod, OmniPod - Oh How I Love Thee!


Nate has been pumping or podding since March 1st and I now cannot imagine handling his diabetes any other way.  Multiple Daily Injections (MDI) are a thing of our past.  Podding has made our lives so much easier, so much more flexible and made Nate's bg numbers so much better.  Diabetes is still here and is still difficult. We still count carbs, measure food, and check Nate's blood sugar 12 to 14 times per day.  We still get up with him 3 times per night to check his bg but the OmniPod is making everything easier.

We still keep Nate on a pretty tight schedule but if we get delayed or held up or just run late it's ok.  No more NPH to cause terrible lows when we run a few minutes behind.  No more rigid schedule in fear that we may not get Nate's meal prepared before the NPH peaks and he crashes.

To date there are 2 major things we have now done with Nate that I cannot imagine doing since his diagnosis and before he started pumping.

The 1st is our trip to Iowa.  We obviously would have gone with or without diabetes but the pod made the trip so much easier.  The day that we left, Nate was recovering from a horrific stomach bug that had kept us up most of the night due to his vomiting.  The days that followed were not easy.  He had NO appetite, would not eat, and was still suffering from a few other symptoms that I will not go into here.  Let's just say if we did get him to eat, he was losing a lot of the carbs pretty quickly.  We were stressed to the max with an all night drive on no sleep, driving non-stop in fear we would not make it to Iowa in time, then once we arrived we spent most of our days and evenings in the hospital with Jim's mom and the rest of his family.  Certainly not ideal conditions for a little one with diabetes.  The crazy good thing is that Nate was ok. We were able to set some temp basals, reduce his boluses and he did great!!  We did great!!  Hey, I'm just going to go ahead and say it - - - I rocked it!

The last time Nate had a tummy bug was just weeks after his dx and we ended up back in the hospital for 3 days.  Tummy bugs and diabetics are not a good combination but with the pod it is certainly more manageable.

The 2nd thing is not quite as big but since Nate's dx I have not wanted to spend any time at our lake house.  It is about 90 miles away from our house and about 60 miles away from civilization.  If anything were to happen there we would have a long drive back to Dallas because there in no one out there that would be able to help with Nate's diabetes.  The closest hospital is the one I went to when I had my miscarriage and there was no one that could even do a sonogram to confirm the miscarriage.  I'm going to go ahead and guess that they do not have a pediatric endocrinologist on staff and they probably don't even have anyone that would have a clue what to do with such a tiny person with Type1.

Well, we packed up our bags this weekend and headed 90 miles south and spent some time at the lake and it was great!  No shots, no worry about the rigid schedule, we didn't have to plan the drive at a certain time so that we could feed Nate at a certain time and all that blah, blah, blah that came with the NPH and the MDI.  It was awesome.  It was fun. It was relaxing.



Nate does always get his own suitcase for all D supplies everywhere we go but even that has become easier with the pod.  The funny thing about this trip is that I packed Nate's D bag with all of his supplies, Emma's bag full of clothes, Sophie's bag full of clothes and my bag with all of my clothes but I forgot to pack any clothes for Nate!!  The good news is that we had all of his D supplies but the bad news was he had to wear his sister's pretty, pretty princess nightgown for night-night!

The hard parts of D are still with us.  That will never change.  We roll with it and do the best that we can to care for him and keep his blood glucose in check but we have days were the meter says HIGH and we have days where the meter says LOW.  We have days where I cry and we have days where he cries.  We have days where we both cry.  Diabetes is not an easy disease.  It is hard on his body and it is hard on my mind.

The pod is making the management easier and his numbers better but with the pod has come more bg checks.  We check Nate's bg all day --- before meals, after meals, before and after snacks, before he goes to bed and as soon as he wakes up and anytime in between where we feel he may be high or low.  We also check him at 10:00 PM, 12:00 AM and 3:00 AM and if one of those number is low we stay up until it is up, if one of those numbers is high, we stay up until it is down.  I've had a lot of people ask me when we will be able to stop checking him at night and the simple answer is NEVER.  The risk it too great.  In the last 2 months there have been 2 young boys in the DOC (diabetes online community) that have passed away due to type 1 complications.  I cannot begin to imagine the heartbreak.  These are families that know diabetes, that do what we do and yet sometimes this silent killer takes our children even when we do everything right.  Therefor, as I pray for comfort for the families that have lost their precious children I will also continue to check my precious son throughout the day and all through the night and thank the Lord for giving me the opportunity to get up and check him even at 3:00 in the morning.



* This post was originally written to be a super positive tribute to the OmniPod but my heart is heavy tonight as I think about the families that have lost their children so my post made a slight detour.
Sunday, March 21, 2010

Gone From My Sight

Geraldine Blanche Houston
'Grandma Geri'
April 17, 1937 - March 13, 2010


I do not yet have the ability to write what needs to be said about my amazing mother-in-law but we were given this poem & I think it is all that needs to be said at this time.



Gone From My Sight

I am standing upon a seashore. A Ship at my side spreads her white sails to the morning breeze and starts for the blue ocean. She is an object of beauty and strength. I stand and watch her until at length she hangs like a speck of white cloud just where the sea and sky come to mingle with each other.

Then someone at my side says: "There, she is gone!"

"Gone where?"

Gone from my sight.  That is all.  She is just as large in mast and hull and spar as she was when she left my side and she is just as able to bear the load of living freight to her destined port.

Her diminished size is in me, not her.  And just at the moment when someone at my side says: "There, she is gone!"   There are eyes watching her coming and other voices ready to take up the glad shout: "Here she comes!"

And that is dying.


--- Henry Van Dyke

Sunday, March 7, 2010

Save the Date to Walk with Nate











Hello Friends,

As you know our son, Nate was diagnosed with Type 1 diabetes in September of 2009. As we approach the 6-month mark of his diagnosis we are gearing up for the annual JDRF (Juvenile Diabetes Research Foundation) Walk for a Cure. We would love to have 100 of our closest friends and family walk to support Nate in his journey with Type 1.


If you would like to walk with Nate, please email me at HoustonWeHaveAProblem@verizon.net and I will add you to our growing list. The walk is a lot of fun for the entire family. They have food, balloons, bounce houses and then there is the 5K walk that will be so much more fun if you are there.

It would be amazing if we could get 100 people to walk with Nate and raise money for finding a cure.



Please help us support Nate and find a cure for Type 1 Diabetes –

With love,

The Houston Family

Jim, Laura, Emma, Sophie and Nate


Tuesday, March 2, 2010

Pumping, Good Grief & HOPE

Pumping.
Well, we did it.  Nate is now officially on the OmniPod Insulin pump. Yea Nate!



He wore the the OmniPod all weekend filled with saline so that I could get comfortable bolusing for all his meals and he could get used to wearing the device.  Personally, I think we both did great!  

Yesterday we met Jessica and family downtown at CMC to get this pumping started.  Nate and Liam both tolerated their site changes and Jessica and I both passed the pump test with flying colors.  Can I just say 1 more time how awesome it is to be going through this with Jessica and Liam? AWESOME. 
 
 

Good Grief.
I decided to place Nate's pod on his bum and cover it with IV3000.  Unfortunately, the major blow out that he has after dinner required a bio-hazard suit and a site change! Good Grief!  So, lesson learned - - - Wait for bum sites until after potty training or invest in a lot more IV3000.  After the blow out I moved the pod to his arm and he is doing quite well with it there.


 
 



All in all Day 1 went pretty well (except for the bio-hazard incident).  Nate's basal rate is set at 0.15 units from 12a-12a so he experienced some highs yesterday but no ketones.  We noted the high times and will make the necessary modifications today. 

I stayed up most of the night to check his bg and watch him breathe.  He was high at midnight so I made a correction, he was in good range at 3:00 AM but was low by 6:00 AM so we definitely have some tweaking to do.  We will get there.  One day at a time.



Hope!  
I am hoping that pumping makes things better for Nate.  I am hoping that we made the right decision. I am hoping that this will help Nate live a very long life. Most of all I am hoping for a cure! 

 
Emma and Sophie are also hoping for a cure for their sweet baby brother!
 
Saturday, February 27, 2010

A Long Post Short

Since I am so behind in my posts I am going to try and keep this long post short but informative.

1) I had the pleasure of hosting a play date last Friday with Joanne and Jessica. Joanne and I were super excited to meet Jessica, L and P (I don't think Jessica posts her kiddo's names in her blog so I will use their initials here). They did not disappoint! Jessica is just as wonderful as she seems on her blog and on FB! L and P are the cutest and sweetest children you could meet. L is wise beyond his years! My eyes filled with tears as he told me all about his diabetes and how happy he was to meet Elise and Nate. Just sitting there chatting with this 3-year old boy made me realize how strong and resilient our T1 children really are. It was fun and insightful being around a little one that could verbalize his T1 feelings to me.

Ms. Elise did not disappoint either. She is always so delightful to be around. I often forget that she is only 2 years old. She is also wise beyond her years and so very sweet that I just want to hug her all of the time! She thinks I'm a little nutty!

Elise, Sophie, Nate and L played beautifully together. I cannot wait to get them all together again. Good times! 

2) OmniPod Training was very educational and I feel totally ready to start this next part of our D journey. I am so blessed that Jessica and I are going down this path together.  I honestly do not think I could handle this huge change without Jessica and all of the other supportive D Moms cheering me on.  Jim is still out of town so I am pretty much doing this on my own.  My mom is attending the training with me but she doesn't live with us so it will be me doing all of the nighttime checks!  I'm already exhausted just thinking about it.

3) BLOG TROUBLE! While we were wrapping up the pump training class our endo, Dr. T stopped by to say hello and discuss my request to switch Nate from H to N. She agreed, we got our new Rx, and all went well with that part of the visit.  Before we got out the door she mentioned that she had been reading my blog and had some concerns.  Me - - WHAAAAT?  Can you imagine the look on my face?  Priceless, I'm sure.  
Here are the bullet points of the conversation:

  • In the post The Hard Stuff she was concerned about Nate's medical information being in a public forum.  Although I did not say it, I thought to myself that if anyone wanted to steal Nate's medical problems I'm quite sure they would bring them right back!
  • She was not too thrilled that I had published an email from a CDE in A Good Response but we both agreed -- my email, my property.  I decided to remove the signature line from the email for privacy.
  • Dr. T also thought I should have asked permission to post pictures from our visit that included medical staff. I had not really thought about that before posting pictures of CDE, Kim teaching me how to do Nate's site insertions. 
  • Since we were chatting about things that were not making us happy I decided to mention that I honestly thought it would be easier to get in to the White House and visit the president than to get an appointment with her.  The funny thing about this was that she AGREED!  She said they are hoping to expand the staff but in the meantime we would just have to wait.  
On the way home from the hospital I could not stop thinking about all of Dr. T's comments.  Although I have a pretty tough exterior I am pretty insecure and was fretting about the entire situation.  So, when I got home that afternoon I sent an email to the Diabetes Educators email address (this is the email address where I communicate with all of the CDEs).

Here is what I wrote:

Hi Angie,

Thank you for the great class today.  I look forward to working with you and the others during this transition onto the pump. Will you please send me the cover sheet and intensive log that I will need for pump start?   Thanks!

Beth,

I want to apologize for publishing your name on my blog.  I removed it today.  I hope I did not offend you in any way by publishing your email and your name.  If so, I sincerely apologize.

Kim,

The pictures we took of Nate’s site insertion include some with you in the shot.  I am happy to take them down if you do not want them on our family website.  I also would like to apologize to you if your pictures on our site are not ok.  I should have asked you 1st - - - I just didn’t think.  If you look at our family site which is partially private and partially public you will see I photograph everything!!  


I would never want to offend anyone.  I blog about Nate, his diabetes, and my frustrations with diabetes; it is not meant to be hurtful or mean-spirited in any way.  It is just how I feel at any given moment.  As you all may or may not know it is very difficult to have a wee one with an illness and often frustrating when dealing with a large hospital such as Children’s Dallas.   

I think the pump training has been wonderful and would like to thank everyone that has called, emailed and helped me through the beginning of this transition.  I look forward to working with you all in the future.

I would have sent this to each of you privately if I had individual email addresses but since I do not --- I hope this is ok.

Thank you -


and here is the email response I got in return:

Hi Laura, 
 
I'm so glad you enjoyed the pump class today and 
I truly hope the pump will help Nate's blood sugars.
We want to let you know that you have not offended any 
of usin any way and we completely understand why you
have a blog.We are definitely here for you and want 
to fully collaborate as a team through Nate's diabetes
journey. You are more than welcome to keep the pictures
and email on your blog. Please continue to release your 
joys and frustrations on your blog but for confidentiality 
to not include last names.  We truly care for you, Nate
and your family and have enjoyed working with you. 
We look forward to this next journey of pumping, and 
again let us know what we can do to help. 
 
Your Diabetes Educators and Friends


Ok, so you can call me a dork but this email made me so happy.  This is what I have wanted all along.  I have longed for the folk's over there to know me, to know Nate and to feel like we are on the same team.  Team Super Nate!!  I am hoping that going forward we can all work together for Nate's best interest.



Will post on Monday about Pump Start Day - - - with pictures!








Wednesday, February 24, 2010

An Interview with my T1 Super Cool Cousin!

I would like to introduce you to my cousin, Brian C.  He has Type 1 diabetes and I am just crazy about him.  He is my cousin by marriage so we are not actually related - - - you know it's one of those family things.  His dad is married to my mom's sister that used to be married to so and so and so on and on.  The only reason I bring that part up is because some people might think that T1  runs in our family which as far as I know (& I know a lot) - it does not.  Brian and I have known each other for about 20 years now and I love Brian like a brother. Since Nate's diagnosis I have been able to lean on him more than ever.   Thank, B!  I love you!


 
Brian and Nate


 
 Here is what Brian had to say about his T1:


At what age were you dx? 
 I was diagnosed at the age of 30.

Do you mind telling me a little about your dx story?  What were your symptoms?  How did you figure out that you had T1?   Were you hospitalized?  What was your BS at dx?  
  I found out about my diabetes while applying for life insurance.  I had recently gotten married to my first wife and thought it would be a good thing to do.  Now before this, I was ignoring signs that something was wrong but like all men we are stubborn and think we are invincible.  I had experienced extreme thirst, drastic weight loss, irritability, (above the normal that I already have), and extreme drowsiness after eating.  In the back of my mind I new there was something not right but was admittedly a little apprehensive about seeking help.  During the life insurance application process they do blood work.  Needless to say, they called me back the next day and told me my blood sugar level was 450 and that I should seek a doctors help immediately.  I was never, nor have I ever been hospitalized due to diabetes.  The irony of this story is unlike most you hear about,  no one in my family has ever had diabetes and the doctor told me that it was highly likely that the EXTREME bacterial infection I got on my honeymoon to Mexico.  He told me that it was likely that the infection had destroyed the part of my pancreas that creates insulin and looking back on when the symptoms started I couldn't argue that fact.

How long have you had T1?
  I have now had T1 for 10 years

How does T1 affect your daily life?
 T1 does not affect my daily life or my activities whatsoever except for taking shots but with the help of technology it has become a minuscule part of my day.
  
Has T1 prevented you from doing anything that you really wanted to do?
 T1 has not prevented me from doing anything, except I don't party and consume alcohol the way I used to but that isn't such a bad thing considering I'm an adult with responsibilities.
 
Debbie, Brian and Bailey

 What treatment are you currently using for T1? 
My current treatments are based on a sliding scale and consist of Humalog before meals based on BS levels and Humulin N at bedtime to counter the sugar my liver makes during the night.  

 What is your current A1c? 
 My last A1C was 6.7

Do you or have you ever had any complications from T1?
 No complications to date

Do you worry about your daughter getting T1?
I don't worry about my daughter getting diabetes because of our family history and the unusual way I developed the disease.
 
 Brian and Bailey

Is there any advice you would like to give me or any other parents caring for T1 children?
 The advice I would give isn't anything that anyone else hasn't already given.  All I can say is that if I had a child of my own I would probably test them very often because after seeing what Nate's Bgl's are from you and the fact he can't tell you how he is feeling then the only way for me to know how my child is feeling would be to test them once an hour or so.  Again, I am NOT in your shoes but that is the only way to know what is going on in my child's body.  

How much do you love me??
LOTS!
I think what you go through on a daily basis with Nate and the girls is far beyond anyone's imagination.  I have repeatedly told Debbie that no one has ANY idea what you endure on a daily basis.  You truly are a hero in my eyes and if you ever need ANYTHING, you can count on me!!!
 
 
I just had to include this pic of me and B dancing at his wedding.
I love to dance with Brian - - he is a great 2-stepper and an all around wonderful man!






Just a Mom

I am NOT a doctor, nor do I play one on this blog.

I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.

The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.

Please consult your doctor if you have any questions or concerns about your health care options.

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