Since I am so behind in my posts I am going to try and keep this long post short but informative.
1) I had the pleasure of hosting a play date last Friday with Joanne and Jessica. Joanne and I were super excited to meet Jessica, L and P (I don't think Jessica posts her kiddo's names in her blog so I will use their initials here). They did not disappoint! Jessica is just as wonderful as she seems on her blog and on FB! L and P are the cutest and sweetest children you could meet. L is wise beyond his years! My eyes filled with tears as he told me all about his diabetes and how happy he was to meet Elise and Nate. Just sitting there chatting with this 3-year old boy made me realize how strong and resilient our T1 children really are. It was fun and insightful being around a little one that could verbalize his T1 feelings to me.
Ms. Elise did not disappoint either. She is always so delightful to be around. I often forget that she is only 2 years old. She is also wise beyond her years and so very sweet that I just want to hug her all of the time! She thinks I'm a little nutty!
Elise, Sophie, Nate and L played beautifully together. I cannot wait to get them all together again. Good times!
2) OmniPod Training was very educational and I feel totally ready to start this next part of our D journey. I am so blessed that Jessica and I are going down this path together. I honestly do not think I could handle this huge change without Jessica and all of the other supportive D Moms cheering me on. Jim is still out of town so I am pretty much doing this on my own. My mom is attending the training with me but she doesn't live with us so it will be me doing all of the nighttime checks! I'm already exhausted just thinking about it.
3) BLOG TROUBLE! While we were wrapping up the pump training class our endo, Dr. T stopped by to say hello and discuss my request to switch Nate from H to N. She agreed, we got our new Rx, and all went well with that part of the visit. Before we got out the door she mentioned that she had been reading my blog and had some concerns. Me - - WHAAAAT? Can you imagine the look on my face? Priceless, I'm sure.
Here are the bullet points of the conversation:
- In the post The Hard Stuff she was concerned about Nate's medical information being in a public forum. Although I did not say it, I thought to myself that if anyone wanted to steal Nate's medical problems I'm quite sure they would bring them right back!
- She was not too thrilled that I had published an email from a CDE in A Good Response but we both agreed -- my email, my property. I decided to remove the signature line from the email for privacy.
- Dr. T also thought I should have asked permission to post pictures from our visit that included medical staff. I had not really thought about that before posting pictures of CDE, Kim teaching me how to do Nate's site insertions.
- Since we were chatting about things that were not making us happy I decided to mention that I honestly thought it would be easier to get in to the White House and visit the president than to get an appointment with her. The funny thing about this was that she AGREED! She said they are hoping to expand the staff but in the meantime we would just have to wait.
On the way home from the hospital I could not stop thinking about all of Dr. T's comments. Although I have a pretty tough exterior I am pretty insecure and was fretting about the entire situation. So, when I got home that afternoon I sent an email to the Diabetes Educators email address (this is the email address where I communicate with all of the CDEs).
Here is what I wrote:
Thank you for the great class today. I look forward to working with you and the others during this transition onto the pump. Will you please send me the cover sheet and intensive log that I will need for pump start? Thanks!
I want to apologize for publishing your name on my blog. I removed it today. I hope I did not offend you in any way by publishing your email and your name. If so, I sincerely apologize.
The pictures we took of Nate’s site insertion include some with you in the shot. I am happy to take them down if you do not want them on our family website. I also would like to apologize to you if your pictures on our site are not ok. I should have asked you 1st - - - I just didn’t think. If you look at our family site which is partially private and partially public you will see I photograph everything!!
I would never want to offend anyone. I blog about Nate, his diabetes, and my frustrations with diabetes; it is not meant to be hurtful or mean-spirited in any way. It is just how I feel at any given moment. As you all may or may not know it is very difficult to have a wee one with an illness and often frustrating when dealing with a large hospital such as Children’s
I think the pump training has been wonderful and would like to thank everyone that has called, emailed and helped me through the beginning of this transition. I look forward to working with you all in the future.
I would have sent this to each of you privately if I had individual email addresses but since I do not --- I hope this is ok.
Thank you -
and here is the email response I got in return:
I'm so glad you enjoyed the pump class today and
I truly hope the pump will help Nate's blood sugars.
We want to let you know that you have not offended any
of usin any way and we completely understand why you
have a blog.We are definitely here for you and want
to fully collaborate as a team through Nate's diabetes
journey. You are more than welcome to keep the pictures
and email on your blog. Please continue to release your
joys and frustrations on your blog but for confidentiality
to not include last names. We truly care for you, Nate
and your family and have enjoyed working with you.
We look forward to this next journey of pumping, and
again let us know what we can do to help.
Your Diabetes Educators and Friends
Ok, so you can call me a dork but this email made me so happy. This is what I have wanted all along. I have longed for the folk's over there to know me, to know Nate and to feel like we are on the same team. Team Super Nate!! I am hoping that going forward we can all work together for Nate's best interest.
Will post on Monday about Pump Start Day - - - with pictures!