- In the post The Hard Stuff she was concerned about Nate's medical information being in a public forum. Although I did not say it, I thought to myself that if anyone wanted to steal Nate's medical problems I'm quite sure they would bring them right back!
- She was not too thrilled that I had published an email from a CDE in A Good Response but we both agreed -- my email, my property. I decided to remove the signature line from the email for privacy.
- Dr. T also thought I should have asked permission to post pictures from our visit that included medical staff. I had not really thought about that before posting pictures of CDE, Kim teaching me how to do Nate's site insertions.
- Since we were chatting about things that were not making us happy I decided to mention that I honestly thought it would be easier to get in to the White House and visit the president than to get an appointment with her. The funny thing about this was that she AGREED! She said they are hoping to expand the staff but in the meantime we would just have to wait.
I'm so glad you enjoyed the pump class today and
I truly hope the pump will help Nate's blood sugars.
We want to let you know that you have not offended any
of usin any way and we completely understand why you
have a blog.We are definitely here for you and want
to fully collaborate as a team through Nate's diabetes
journey. You are more than welcome to keep the pictures
and email on your blog. Please continue to release your
joys and frustrations on your blog but for confidentiality
to not include last names. We truly care for you, Nate
and your family and have enjoyed working with you.
We look forward to this next journey of pumping, and
again let us know what we can do to help.
Your Diabetes Educators and Friends
Ok, so you can call me a dork but this email made me so happy. This is what I have wanted all along. I have longed for the folk's over there to know me, to know Nate and to feel like we are on the same team. Team Super Nate!! I am hoping that going forward we can all work together for Nate's best interest.
Will post on Monday about Pump Start Day - - - with pictures!
Yay Laura! It's a wonderful feeling to have a team of nurses, CDE's, and endos behind you! You deserve to be treated like more than a number- and if your blog helped in this at all, HOORAY!!! Keep blogging and sharing the good, the bad, and the ugly with us!
I'm so happy for you and Nate and your family to begin this new chapter of living with a pump. (side note- when I first typed this it said pimp instead of pump and that made me laugh!). It doesn't magically fix everything- there are still good times and bad- but it is soooooo much better than MDI! I hope you love it as much as we do!
Love the lunch you had, too! What a special bond our kids have! I'm so jealous! I hope that one day that playdate will include me and Avery!
So glad you had a fun play date! And that you get to go through the pump start up with someone else using the same pump! Yeah!
I like the email you sent and the response you got from the CDE's! And you are definitely NOT a dork! I would be happy getting an email like that too!
Can't wait to read about and see pictures of pump start up on Monday! :)
Hello rock star mom! I am so proud of you...starting the pump...and without your hubby at home! You are going to do great. Easy peasy lemon squeezy, right? :)
How wonderful it is that you gals can get together. I wish I had that years ago. It makes my heart smile for all of you!
Good luck next week!!!
Hallie: Pimp? Pimp My Ride is one of my hubby's favorite shows. Maybe we can pitch a new reality show...Pump My Kid. (That sounds awful! But I'm not deleting it! I feel rebellious tonight!)
Okay Laura I dont get a good feeling from this dr you use just by the words she used . I think the more appropriate word would be hyper anal intensive LOL !!! I have never seen or heard of a dr being so uptight about a blog and is her face in any of the blog NO !!! so one asks to ask theirselves why is she so upset by something that clearly did not do any harm . Oh and btw that is part of the hypoctatic oath if I am not mistaken . first physician do no harm . My goodness when i read your blog the first thing that came to my mind is what is this dr so worried about ?anyway just my two cents on this blog sorry if I offended anyone.
YAYYYYYY! I'm so thankful for CDE's that stand behind you :) THANK YOU Children's Dallas CDE's!! Being able to express your feelings in your blog is the whole purpose for it, good & bad. It's nice that others see it for that! It's also wonderful to be able to share pics...can you imagine our blogs with no pics? We'd never get the full effect of "family" ;) Can't wait to see more pics!!!
I am so impressed by you, Laura... You did a great job standing up for yourself and Nate! And I love how you also emailed the CDEs, and their response! Bravo, Momma, bravo!
I too had a great time with you guys and was sad I had to take off early. We need to do it again, soon! Elise keeps talking about Sophie, Nate and Liam.
And I just need to say this again Laura... you are a ROCK STAR! I can't imagine doing everything myself, yet you are and doing an amazing job. I am in awe, sista!
So blogger at my comment, but long story short- so stoked we get to do this together, even more stoked that I met you and Joanne and feel so much more connected and supported than I did a couple of weeks ago, and am so proud of you for standing up for Nate and not cowering when your doctor confronted you. Great email response from them! I hope things stay as good as they are with the CDE's.
Hallie- your pimp comment was all too appropriate, since our local omnipod rep (LOVE her) told my son to "pimp his pod" with the stickers. Ha ha! I'm waiting for that one to bust out at preschool. Too bad Nate wasn't there to learn a new word, huh Laura? :D
I'm Heidi. My six-year-old son has T1D, too. I just read your post and could totally relate to your experience with Dr.T. I recently wrote something on my blog about the administrators at my son's school. Previously unbeknownst to me, a teacher at the school reads my blog, and when she saw my post regarding the administrators, she showed it to them. My husband and I were then called into the assistant principal's office for a private meeting, during which he slammed me for writing about the school, even though I have never once mentioned the school name or the administrators' names. It was one of the most awkward moments of my life! I can imagine how you felt talking to Nate's doctor. Kudos to you for following up with an email, clearing the air and making the connection you wanted to make with the CDEs! You are so not a dork. I would have appreciated that reply too. Good luck pumping!
Hallie and Meri, Pimp and Pump My Kid--ha ha! :)
Hey chic! So great play date! That is awesome!! I'd love to see some pics!
Second, I think I would be totally bugged if someone commented on the content on my blog. I just would. Weird!! Glad you got it all worked out though! I know our CDEs read my blog. They've never said anything about it!
I'm so glad you ladies all got together with the kiddos - there is something very comforting being with other parents that understand the way we watch our kids. I think it's great that you've all found each other! We have Dr. T as well, and I have been more outspoken with her about my frustrations with what goes on there. I doubt she's read my blog, but now I wonder. Takes a certain set of you know whats to mention it to you though...WOW. Glad you handled it the way you did.
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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