Showing posts with label OmniPod. Show all posts
Showing posts with label OmniPod. Show all posts
Friday, February 10, 2017
Friday Night Fun with Diabetes and Crohns
8:20 PM
From Friday, February 10th on Facebook: Rocking #Friday night at the #HivoryHome #Hivory2017 #Humira#Omnipod #CrohnsDisease #TypeOneDiabetes #Freestyle #SuperNate#SophieDoodleDoo #MomMomMommyMom #HoustonWeHaveAProblem#Blog #OurAutoimmuneLife
I do love this crazy life ours!
I do love this crazy life ours!
Tuesday, January 31, 2017
The 'What If' Game
5:51 PM
Posted from Facebook 1/20/17
After almost 8 years with Type One Diabetes we have learned to roll with most anything it throws our way. Some days are easier than others and some days are much harder.
Last night while Nate slept his blood sugar dropped unexpectedly. Those little red dots are sever hypoglycemia that he slept through and we almost missed. By the time his Continuous Glucose Monitor alarmed, his blood sugar was 47. I fear it had actually gone much lower but by the time we got to him his body had already started fighting the hypo, thankfully.
His liver dumped glucose (its much more complicated - won't go into it all here) which saved his life. We gave him 10g of carbohydrates which would normally raise his blood sugar by about 100 but his blood sugar soared over 500 and stayed there most of the night.
It was a long night filled with what-ifs, what could have beens, and FUD. I share this not looking
for sympathy or praises but instead to educate.
for sympathy or praises but instead to educate.
Diabetes is not a joke, it's not a punchline, and it's not to be taken lightly.
I don't exaggerate when I write this ---
We could have lost him last night. While he slept. In the next room.
I can't even think about it without tears stinging my eyes and rolling down my cheeks --- it makes my body physically ache to go over what could have happened. And I went over it in my head all night long.
There's nothing funny about that.
And I'm not alone. There were moms and dads around the world carefully watching over their children last night. Forcing them to eat in their sleep to keep them alive, carefully calculating insulin doses to lower dangerously high blood sugars, and some just watching the rise and fall of their children's chest because sometimes the fear is so overwhelming.
There were adults doing it all too. These babies grow up and diabetes doesn't go away! Wives checking husbands, husbands battling with hypoglycemic wives ...
❤️
It's a tough disease and the people that live with it are amongst the strongest people I know! They are warriors.
--- Thankfully smooching Nate's face off this morning while he rolls his eyes, grins his silly grin, and allows me to love on him all while he has no idea what happened last night. 
❤️
Wednesday, August 7, 2013
Rocking the Smaller Pod
1:35 PM
Nate starting podding with the new, smaller Omnipod 6 weeks ago and although I don't know if I would say it was worth the wait (3.5 years for us) I am certainly enjoying most of the new features!
Of course, we received the pods the day before we left on vacation but no PDM. I was less than thrilled! And obviously while we were on vacation our PDM malfunctioned. I had a mild panic attack.
All in all it tuned out fine and as soon as we got back I slapped the smaller pod on and we haven't looked back! Nate couldn't care less about the size or any of the other features but I am quite happy with it. I won't do a review here as I've read many others on different blogs
The one thing that I did struggle with is the Insulin on Board (IOB) feature. I don't like it. We went from MDI to the pod so I have never had the IOB calculated for me for meal boluses. Nate stayed high for days! ---- I wish there was a way to turn it off. I changed a few settings including insulin duration and have found ways to work around it so we are no longer dealing with IOB issues. To be honest, I often don't use the bg to calculate the bolus because I don't want the IOB in the next bolus or correction. Nate is a snacker, he eats all day long so when it calculates his IOB it just doesn't give him enough insulin. I'm sure there is a better way to work this out so if you have suggestions I am happy to hear them. Current;y, this is what is working for us. YDMV.
Could Insulet have handled the switch over for existing customers better ---- Oh my stars, YES!
But at the end of the day we have the new system and I'm very pleased.
I just wanted to let everyone know that we did finally get the smaller pod and all is right in
Thursday, April 4, 2013
OmniPod, OmniPod . . . Oh how you disappoint thee!!
12:53 PM
On March 20th, 2010 I wrote a post titled OmniPod, OmniPod . . . Oh how I love thee! Nate had been pumping with the OmniPod for exactly 20 days. Yes, on March 1, 2010 we became fiercely loyal and outspoken customers of Insulet, the makers of the OmniPod. My most popular posts all have to do with OmniPod and the number one and number two search topics that lead people to Houston We Have a Problem . . . you guessed it . . . OmniPod and OmniPod for Toddlers. True Story. As a matter of fact, I have an entire section on HWHAP dedicated to my most popular OmniPod posts.
I believe anyone that knows me or has read HWHAP knows how much we love the OmniPod insulin pump that Nate wears. We fought hard to get it and have helped countless other families with toddlers navigate their way through hospitals and doctors that tried to discourage them from putting their tiny tots on this pump. I love helping others by sharing Nate's story!!
I've plastered pictures of Nate's bum all over this blog for the greater good of young pumpers and OmniPod has directed parents of little ones here for years.
I have been . . .
Fiercely loyal.
Fiercely outspoken.
And now I am . . .
Fiercely disappointed.
This past December, Insulet announced that the long awaited approval from the FDA had been granted for The New, The Improved, The Smaller OmniPod!! If you follow the link to that post written in May of 2010 you will see that at that time I was super excited and super naive about the smaller pod that we had been promised!
Almost 3 years later I am sitting here STILL WAITING with no idea at all when Nate will be able to start using that new, improved, smaller pod. They are being released to new customers right now and as of today I still have no answer from Insulet as to when we will be upgraded. I emailed our sales rep and asked about our conversion and expressed my disappointment with the lack of communication. I wanted some answers . . . I want a conversion date.
The response I got was super friendly as usual but was the standard answer that I think all existing patients are hearing . . .
' . . . no true conversion date for existing patients . . . only the HOPE that it will be soon."
BOO!
Our DME company, Byrum told me that they have to use all of their current inventory before they can start talking to anyone about upgrading to the new system. I heard the words . . . late summer . . . maybe August from them.
BOO!
I won't lie --- it is not fun seeing all the Facebook posts & pictures and blog posts from new customers that are already using the new smaller pod and we have no idea when we will even know when we will get the new system.
I understand --- I do. I know they have to work through the existing inventory and not take a loss but for the 1st time since we started this journey I am extremely disappointed with Insulet's customer service. I am not alone in my disappointement. The grumblings on social media are not nice --- the existing patients are restless. That might be putting it nicely!
Read more from existing patients here:
This is Caleb has ben waiting 6 years!
Sweet Grace has been waiting 3 years just like us!
And for some reviews on the new system by new patients or 'cut the cord' patients:
Sweetly Voiced - Melissa
Sarah Kaye (FKA Sugabetic)
Will I remain loyal ---- yes!
Will I remain outspoken ---- always!
Will I discourage people from going with this system ---- never!
I have seen comments from customers looking at the system now questioning if OmniPod's customer service will be ok. Let me assure you as a new patient you are going to get fantastic customer service. Sadly for us, the existing patient we feel forgotten.
And because it's been a while since you've seen one of these . . . here ya go:
Most likely the last one ever because he's almost 5 and will most certainly want to strangle me one day for posting his butt shots on here for the last 3 years! Oh and yep ---- rocking two pods in this shot --- pod change day! You're welcome!
Keep calm and OmniPod on . . .
Labels:Insulet,OmniPod,Smaller Pod | 13
comments
Thursday, April 21, 2011
The number 14 brought to you by OmniPod and DexCom
9:55 PM
14. (4/21/11) Anyone that has read this blog for any amount of time knows that Nate wears his pod on his bum and his Dex on his arm. We've always been able to keep his pod in place and get really good numbers from his Dex this way. Well, the last 2 pods have been on his arms because we had to place his last DexCom sensor on his bum. OMG - Holy Rockin' Numbers! We are getting great blood sugars with arms sites. The last 2 days have been 100% IN RANGE! HOLLA! We are also getting great DexCom readings -- I'm talking pretty darn near perfect readings. I'm totally digging this switcheroo!! Elated!
Labels:DexCom,OmniPod,Type 1 Diabetes | 18
comments
Tuesday, April 19, 2011
#12 Not So Easy!!
9:58 PM
Today hasn't been the easiest day but I've got a #12 . . .
12. (4/19/11) Jill from Diabetes Sweeties sent us some superdy duperdy cute crafts to decorate pods with so the girls and I got to work this evening after dinner (& homework). We also made some super cute Easter Pod magnets for Easter table favors. Love D-Mom, Jill. Thankful. Fun. Cute. Quality time with the girls.
12. (4/19/11) Jill from Diabetes Sweeties sent us some superdy duperdy cute crafts to decorate pods with so the girls and I got to work this evening after dinner (& homework). We also made some super cute Easter Pod magnets for Easter table favors. Love D-Mom, Jill. Thankful. Fun. Cute. Quality time with the girls.
| From Jill - Such a Sweetie!! |
| Jill sent this super cute faces for the pods!! LOVE! |
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| Painting Pods is a messy job with a 5 and 7 year old. :) |
![]() |
| Turned out pretty cute - right? |
![]() |
| I think we are ready for Easter! |
Labels:OmniPod | 13
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Just a Mom
I am NOT a doctor, nor do I play one on this blog.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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