Today we had our 1st appointment with our original Endo, Dr. T. She was the one on-duty when Nate was diagnosed and so lucky her --- she gets Super Nate and his CrAzY mama! We hadn't seen her since December of 2009 but she has followed our progress through my blog and through Joanne -- Elise is also a patient. And . . . now that I think of it I believe it was Dr. T that originally brought Joanne and I together. Wow - I should be forever in her debt just for that!!
I'm excited to say that the appintment went very well. Hmmm . . . that is to say that other than the fact that
- I spent all morning printing out our OmniPod and DexCom logs and forgot to take them to the appointment
- Sophie has some tummy issues this AM so we were running a teeny tiny bit behind
- No matter how many toys I provided Sophie and Nate fought over each and every one
- Both kids thought it would be fun to climb up on to the furniture in the room and JUMP OFF!
Other than being totally stressed out of my mind the appointment went really well. I love going to Children's Legacy Campus because it is 5 miles from my house. It is much smaller than the Dallas facility with a much easier check-in process. The only draw back today was that this campus was not able to upload the OmniPod reports which the Dallas location can do. If they had been able to do that -- me forgetting the reports would not have been such a catastrophe! Hopefully, they will be able to do that by our next appointment because it is quite likely that I may forget the reports again - just depends on the day!
Nate was a total ROCK STAR today. He did everything they asked him to do and did not shed 1 single tear. He's seriously one brave little guy!
The worst part of the appointment was when Dr. T told me that Nate's a1c is currently 7.9. I had a total WTF moment and nearly passed out. He's been sick for 2-weeks so we've been running a wee bit high but I was totally not prepared for that number. His PDM shows a 90-day average of 170 right now so I knew it would be higher but that 9 on the end really through me right over the edge!
Now, I know I have written a thousand times on other blogs about it just being a number, preaching about how you shouldn't let the number define you, saying it's not a report card . . . blah blah blah!
I LIED PEOPLE!!!!!
It's not just a number ---- it's my son's life!!
The number does define me ---- I feel like a crappy pancreas.
I feel like I just got an F on my report card!!
UGH! I feel like someone needs to come remove the dagger that is piercing my heart right now!!
Drama Queen - maybe!! But Oh My Goodness . . . I just wasn't expecting that number at all.
Ok - I know you are all going to say all of the same stuff I've said to you in the past and I appreciate it. I really do. :)
Reyna has a great post on Joe's A1c and her mixed emotions --- check out her post here! I, like Reyna don't want to offend anyone by being so upset - I know it could be worse. I'm hoping you all understand. As a mom I put SO much into Nate's care that maybe I do look at this as my report card. I was never a straight A student but I enjoyed basking in the glow of the A/B Honor Roll quite a bit! There were the occasional progress reports sent home but that was my warning to step up my game. Maybe a progress report would have been helpful in this situation. :)
Ok - so to leave this post on a positive note I want to add that Dr. T was just so kind today that I had to share this last little story. She reads my blog occasionally and she mentioned that she read my 'Help Me' post from last month. She had a few kind words to say about the post and she brought me a book written by Nancy G. Brinker, Founder of Susan G. Koman for the Cure. She thought the book, Promise Me (How a Sister's Love Launched the Global Movement to End Breast Cancer) would be a good read for me. I couldn't agree more.
Thanks, Dr. T.
It's nice to be back.
Now let's work on that A1c.