Oh, how I love my precocious little princess.
She has the smile that can light up the entire state of Texas!
She is a pure delight and a bright light in our lives.
Today is her birthday and I want to tell her stupid Crohn's to leave my little girl alone!! Today is her special day!! She doesn't deserve to feel bad. She doesn't deserve what you do to her little bitty 5-year old body. She couldn't enjoy her pancakes at breakfast, her special time opening gifts and you even robbed her the pleasure of eating the wonderful birthday cookies that we made today. I cannot hate you because you are part of who my special girl is but I hate what you are doing to my princess today and everyday that you rear your stupid, ugly head!! <--- Yes, I feel better after calling names!!
Two things that I will not forget about today - - -
After Sophie got out of the shower she was standing in the bathroom with her robe and slippers on --
She asked "Mommy, when will I be 5?'
I answered "You are 5-years old today, Sweet Girl"
to which she replied "but Mommy - I'm not big like Emma"
I told her "Emma is almost 7 -- you will be that size when you are almost 7 too"
Sweet Sophie looked down and her slippers, lifted her foot just slightly, and said "but Mommy, my slippers still fit today --- I didn't grow at all. I'm pretty sure I'm not 5 yet"
I answered with a big hug and kiss and a little chuckle!
After breakfast today I found Sophie in her bed resting and when I asked her why she said that she really, really wanted to feel better today because it is her birthday. UGH!!
Sweet Girl - I really, really want you to feel better today and everyday. I'm so sorry you have been given this cruel, grown-up disease. I wish I could take it from you. I would be the happiest mommy in all of the world if I could take your Crohn's and Nate's T1D - Happiest Mommy EVER!
For those note familiar with the symptoms of Crohn's:
- Diarrhea. The inflammation that occurs in Crohn's disease causes cells in the affected areas of your intestine to secrete large amounts of water and salt. Because the colon can't completely absorb this excess fluid, you develop diarrhea. Intensified intestinal cramping also can contribute to loose stools. Diarrhea is the most common problem for people with Crohn's.
- Abdominal pain and cramping. Inflammation and ulceration may cause the walls of portions of your bowel to swell and eventually thicken with scar tissue. This affects the normal movement of contents through your digestive tract and may lead to pain and cramping. Mild Crohn's disease usually causes slight to moderate intestinal discomfort, but in more-serious cases, the pain may be severe and include nausea and vomiting.
- Blood in your stool. Food moving through your digestive tract may cause inflamed tissue to bleed, or your bowel may also bleed on its own. You might notice bright red blood in the toilet bowl or darker blood mixed with your stool. You can also have bleeding you don't see (occult blood).
- Ulcers. Crohn's disease can cause small sores on the surface of the intestine that eventually become large ulcers that penetrate deep into — and sometimes through — the intestinal walls. You may also have ulcers in your mouth similar to canker sores.
- Reduced appetite and weight loss. Abdominal pain and cramping and the inflammatory reaction in the wall of your bowel can affect both your appetite and your ability to digest and absorb food.
People with severe Crohn's disease may also experience:
- Eye inflammation
- Skin disorders
- Inflammation of the liver or bile ducts
- Delayed growth or sexual development, in children
When Sophie's Crohn's flares she has to use the bathroom anywhere from 10-15 times per day. She has severe abdominal cramping, a lot of bleeding, and diarrhea. She spends about 10 or 15 minutes in the restroom each time due to the urge to keep 'going'. It is heartbreaking at any age but to see my little girl suffer is killing me!
This is the 2nd time since her diagnosis that she has come out of remission with the onset of a severe cold or flu. I don't know if there is a relation with other illnesses that brings it on because we are still learning as we go.
Please pray for a swift remission for Sweet Sophie. Thank you!!
And . . . before I let you go I would like to introduce everyone to a new D-Mom that I have had the pleasure of chatting with here locally. Her son, Parker was diagnosed with T1D in December. I still remember so clearly those overwhelming feelings of sadness and confusion after Nate's diagnosis. Thank goodness I was welcomed into the warm embrace of the DOC. Won't you please take a moment to give Heather some D-Mama and D-Peep love over at The Anderson Chronicle?
Sweet Birthday Wishes to a very Sweet Birthday Girl!
Feel better soon, sweet Sophie!!!
Laura - thank you so much for posting all the information on Crohn's! Its just as important that people are aware of those signs an symptoms as they are of the ones associated with T1D!
I hope the sweet birthday girl starts feeling better soon!
What a sweet post . . .that is what Poppa had to say about it . . .he also said "wish that family could catch a break!" We do hope our Sophie feels better and we are looking forward to celebrating once this crazy weather clears up! Love all the photos . . .she is growing up so fast . . .even if she does not realize it! happy birthday, Sophia Elizabeth!!
Thanks so much for the sweet welcome to the online community/support group. I feel so welcomed!
Happy Birthday to sweet Sophie!! We have a family history of Crohn's as well. I know how hard that must be to watch your child go through those pains after watching my husband's brother struggle with it. You are super mom dealing with two autoimmune diseases in one family.
My husband and I are reading a book titled The Autoimmune Epidemic, it is scary because we are living it.
Oh, Laura I am sorry. She is in my thoughts and prayers. I have a great friend whom I fell in love with in college (truly deeply because he's one of those amazing people that just makes you feel great!) whom has Crohns and saw how it just attacked him at a whim and often left him so vulnerable to other illnesses. He's now a wonderful husband, teacher, and father - his Crohns seems to have subsided more than when in vibrant 20's but his compassion brought on by this disease is still as bright and fierce as ever.
I hope she had a very special day!
'Cucking Frohn's' Hahahahahahahahaha. Oh my! Had to wipe a tear from my eye for that one. Yep. Laughing so hard I cried a bit.
Sweet, sweet Sophie. Happy Birthday!!!!! So sorry to hear about the recurrance. Man. I just can't imagine.
Thank you Laura for informing us of the warnign signs and symptoms and complications. What a crappy (no pun intented) disease.
Ok, the tears are flowing now. My Miss E is 5 years old too and all I can think about is how difficult this must be for Sophie and for you, they are so young yet have to endure so much. Seeing our babies suffer has got to be one of the worst pains a mother must endure :(
I will be praying for Sophie.
Wishing her a very happy and blessed birthday!!!
So sorry Laura and Sophie! Tell Miss Sophie that I feel her pain! Have they talked Remicade at all with you? It is insanely expensive, but has completely changed my life. I started it in 2007 and have not had one flare since then. Before the Remicade I never went one year without a flare. My 3 yr old (non D) has pooped blood twice and had BG of 180 in the past couple of months. Do you ever feel like your whole life is one big time bomb...just waiting for the next thing to happen? Sorry for being a downer here!
I hope Sophie's flare is under control soon and that she had a great birthday!
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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