Oh, how I love my precocious little princess.
She has the smile that can light up the entire state of Texas!
She is a pure delight and a bright light in our lives.
Today is her birthday and I want to tell her stupid Crohn's to leave my little girl alone!! Today is her special day!! She doesn't deserve to feel bad. She doesn't deserve what you do to her little bitty 5-year old body. She couldn't enjoy her pancakes at breakfast, her special time opening gifts and you even robbed her the pleasure of eating the wonderful birthday cookies that we made today. I cannot hate you because you are part of who my special girl is but I hate what you are doing to my princess today and everyday that you rear your stupid, ugly head!! <--- Yes, I feel better after calling names!!
Two things that I will not forget about today - - -
After Sophie got out of the shower she was standing in the bathroom with her robe and slippers on --
She asked "Mommy, when will I be 5?'
I answered "You are 5-years old today, Sweet Girl"
to which she replied "but Mommy - I'm not big like Emma"
I told her "Emma is almost 7 -- you will be that size when you are almost 7 too"
Sweet Sophie looked down and her slippers, lifted her foot just slightly, and said "but Mommy, my slippers still fit today --- I didn't grow at all. I'm pretty sure I'm not 5 yet"
I answered with a big hug and kiss and a little chuckle!
After breakfast today I found Sophie in her bed resting and when I asked her why she said that she really, really wanted to feel better today because it is her birthday. UGH!!
Sweet Girl - I really, really want you to feel better today and everyday. I'm so sorry you have been given this cruel, grown-up disease. I wish I could take it from you. I would be the happiest mommy in all of the world if I could take your Crohn's and Nate's T1D - Happiest Mommy EVER!
For those note familiar with the symptoms of Crohn's:
- Diarrhea. The inflammation that occurs in Crohn's disease causes cells in the affected areas of your intestine to secrete large amounts of water and salt. Because the colon can't completely absorb this excess fluid, you develop diarrhea. Intensified intestinal cramping also can contribute to loose stools. Diarrhea is the most common problem for people with Crohn's.
- Abdominal pain and cramping. Inflammation and ulceration may cause the walls of portions of your bowel to swell and eventually thicken with scar tissue. This affects the normal movement of contents through your digestive tract and may lead to pain and cramping. Mild Crohn's disease usually causes slight to moderate intestinal discomfort, but in more-serious cases, the pain may be severe and include nausea and vomiting.
- Blood in your stool. Food moving through your digestive tract may cause inflamed tissue to bleed, or your bowel may also bleed on its own. You might notice bright red blood in the toilet bowl or darker blood mixed with your stool. You can also have bleeding you don't see (occult blood).
- Ulcers. Crohn's disease can cause small sores on the surface of the intestine that eventually become large ulcers that penetrate deep into — and sometimes through — the intestinal walls. You may also have ulcers in your mouth similar to canker sores.
- Reduced appetite and weight loss. Abdominal pain and cramping and the inflammatory reaction in the wall of your bowel can affect both your appetite and your ability to digest and absorb food.
People with severe Crohn's disease may also experience:
- Eye inflammation
- Skin disorders
- Inflammation of the liver or bile ducts
- Delayed growth or sexual development, in children
When Sophie's Crohn's flares she has to use the bathroom anywhere from 10-15 times per day. She has severe abdominal cramping, a lot of bleeding, and diarrhea. She spends about 10 or 15 minutes in the restroom each time due to the urge to keep 'going'. It is heartbreaking at any age but to see my little girl suffer is killing me!
This is the 2nd time since her diagnosis that she has come out of remission with the onset of a severe cold or flu. I don't know if there is a relation with other illnesses that brings it on because we are still learning as we go.
Please pray for a swift remission for Sweet Sophie. Thank you!!
And . . . before I let you go I would like to introduce everyone to a new D-Mom that I have had the pleasure of chatting with here locally. Her son, Parker was diagnosed with T1D in December. I still remember so clearly those overwhelming feelings of sadness and confusion after Nate's diagnosis. Thank goodness I was welcomed into the warm embrace of the DOC. Won't you please take a moment to give Heather some D-Mama and D-Peep love over at The Anderson Chronicle?