Wednesday, February 15, 2017

Medical Supplies - Full Time Job


I seriously wish I could be paid by the hour for the time I spend advocating for medical supplies for my children. I normally like to keep things upbeat and chill on FB but today has been a beating, this week has been a beating ...

Children with lifelong chronic illnesses should not have to fight for the medically necessary equipment that keeps them alive. No one should!

How hard is it? 

And I fear things are only going to get worse all the way around --- fighting for their medical needs and their federally protected rights is exhausting.

Today I am tired. More than just sleepy. Just tired of the bullshit. And let's be clear ---- it is all bullshit. 





Friday, February 10, 2017

Friday Night Fun with Diabetes and Crohns

From Friday, February 10th on Facebook: Rocking #Friday night at the #HivoryHome #Hivory2017 #Humira#Omnipod #CrohnsDisease #TypeOneDiabetes #Freestyle #SuperNate#SophieDoodleDoo #MomMomMommyMom #HoustonWeHaveAProblem#Blog #OurAutoimmuneLife








I do love this crazy life ours!


Wednesday, February 8, 2017

Plexus Perks - Working from Home - Endo Day



Still my favorite boy today! #BoyMom #DMom #TypeOneDiabetes --- Endo Day for this #cuteness! #A1C #Diabetes #SuperNate #Hivory2017#workathomemom #WAHM
So fortunate to be able to spend time w this guy and have the #timefreedom to take him to all of his appointments.  







The above is taken from my Instagram post on February 8th.  I really do love being able to work from home and spend time with my littles when they need me.  Nate's quarterly endocrinologist appointment is not how I would choose to spend time with my boy but we make the best out of what we have been given and usually end up having such a great day together!  

Blessed by Plexus.  Blessed to be a Boy Mom!  -- Blessed! 


❤️


Thursday, February 2, 2017

Sophie Turns 11


She's stubborn, messy, a brat at times, clumsy, loud, and silly but in my eyes she's perfect!  She's taught me how to love fiercely and unconditionally. 
Let's be honest, there are days that she tests me from the moment she gets up until the moment I'm screaming for her to go to sleep but that's the me in her. She's strong, passionate, brave, and beautiful. 
She will be the friend that is there --- no questions asked. I call it the 'bury the body' friend. She's true to herself and fights for what she wants. Amazing little warrior.  ❤️
Though she be but little, she is fierce. 
I love seeing these pictures that demonstrate every aspect of her personality. ---> Uploaded them here!
And yes, she chose to go 4-wheeling with Ian today instead of a girls day w me. I love that she loves him so! ❤️
The Doodle is eleven today. Best day ever. 
#SophieDoodleDoodleDoo


---> The FB post here.






Tuesday, January 31, 2017

The 'What If' Game



Posted from Facebook 1/20/17

After almost 8 years with Type One Diabetes we have learned to roll with most anything it throws our way. Some days are easier than others and some days are much harder. 
Last night while Nate slept his blood sugar dropped unexpectedly. Those little red dots are sever hypoglycemia that he slept through and we almost missed. By the time his Continuous Glucose Monitor alarmed, his blood sugar was 47. I fear it had actually gone much lower but by the time we got to him his body had already started fighting the hypo, thankfully. 
His liver dumped glucose (its much more complicated - won't go into it all here) which saved his life. We gave him 10g of carbohydrates which would normally raise his blood sugar by about 100 but his blood sugar soared over 500 and stayed there most of the night. 
It was a long night filled with what-ifs, what could have beens, and FUD. I share this not looking
for sympathy or praises but instead to educate. 
Diabetes is not a joke, it's not a punchline, and it's not to be taken lightly. 
I don't exaggerate when I write this --- 
We could have lost him last night. While he slept. In the next room. 
I can't even think about it without tears stinging my eyes and rolling down my cheeks --- it makes my body physically ache to go over what could have happened. And I went over it in my head all night long. 
There's nothing funny about that. 
And I'm not alone. There were moms and dads around the world carefully watching over their children last night. Forcing them to eat in their sleep to keep them alive, carefully calculating insulin doses to lower dangerously high blood sugars, and some just watching the rise and fall of their children's chest because sometimes the fear is so overwhelming. 
There were adults doing it all too. These babies grow up and diabetes doesn't go away! Wives checking husbands, husbands battling with hypoglycemic wives ... ❤️
It's a tough disease and the people that live with it are amongst the strongest people I know! They are warriors. 
--- Thankfully smooching Nate's face off this morning while he rolls his eyes, grins his silly grin, and allows me to love on him all while he has no idea what happened last night.  








❤️


Saturday, December 24, 2016

The Hivory Happy Holiday Season Post


Happy Holidays from the Hivory Family -


This year - 2016 - is not our year!  We are a blended family - what that means for us most of the time is more children, more happy, more love, more smiles, more laughter and sometimes more hard, more sadness, and more tears but mostly more happy! But every other year - the even years, Ian and I are left without all of the children, the smiles, the laughter, and no matter how many years go by -- it doesn't get any easier!  Look at those sweet faces - how can we Christmas without them?




The answer is -- we don't!  Today is the 24th but it is not "our" Christmas Eve and tomorrow will be the 25th but not "our" Christmas day.  The wonderful thing about our family is how well we all get along -- the children are SO loved!!  We really could not ask for anything better for them - they are with the rest of their families celebrating and sharing their smiles and happiness with them this year!

Ian and I busy ourselves during this time and although it is never easy we are comforted by the love, happiness, smiles, and cheer that we know the littles are experiencing. That being said the tears still flow and my heart still aches to be with them during this time!



So, before I take myself to the spa for a day full of pampering I will share these amazing smiles with the rest of you . . .

Thank you to Natalie K for capturing all of this happy!

Emma - Age 12

Lexi - Age 12

Sophie - Age 10

Nate - Age 8

London - Age 6


Aren't they the cutest?  And getting so big! How did we get so lucky?  These kiddos really make our house a home, our hearts so full, our family complete, and our bank account SO empty!  






From our hearts to yours . . . Merry Christmas and Happy Hanukkah! 


Thursday, November 3, 2016

Diabetes -- Facts, Love, and Grace






I posted this picture one year ago today at the beginning of Diabetes Awareness month.  It came up in my FB newsfeed this morning.

The same medicine (insulin) that keeps Nate alive, is the same thing that can kill him if given just a little too much.

Last week we had a terrible scare.  I had just finished getting ready for an earned Plexus event at the Gaylord.  I was in my hotel room about to head out and my phone was blowing up with text messages.

Ian texted me and told me that Nate's insulin pump, his Omnipod had "alarmed" that there was an occlusion and it had stopped working right as they were sitting down for dinner.  They were out so we both agreed that an injection was the best course of action.

A few minutes later Ian sent a follow-up text to confirm the amount of insulin given.

Laura!

Baby!

Is this what 2.35 unites looks like?

Over here!


He knows me so well.  He knew I was distracted so he kept trying.  His gut told him to do so.  I finally responded.  I called him right away.  I was hoping that he was kidding but he was not.  He had mistakenly given Nate 23 units insulin instead of 2.35.

How could this happen?
I was scared.
My head was spinning.
I was having trouble processing.

I wanted to be with Nate.

We made a plan to meet at the house, load up the kids, and head to the hospital.  We did the math and there were just too many carbs to consume to keep him safe.  To keep him alive.

The drive home was excruciating.  6 o'clock traffic.  Ian was feeding Nate.  Cookies, cake, and candy - Nate's dream come true!  But his tummy started to hurt and he couldn't eat anymore.

Ian was so calm, yet nervous at the same time.  He felt overw
helming guilt.  I could see the fear and disappointment in his eyes.  It made me love him even more.  You see, anyone could have made this mistake. It is not terribly uncommon.  Most people have no idea how small 2 units of insulin actually is when drawn into a syringe.  It is difficult to draw up such a small amount.  These is no 5 on the syringe so often the 10 is mistaken for 1.0.
In the hospital I have noticed that when the nurses give insulin to a patient a 2nd nurse has to come in and verify the dose before it is given.

---23 units could have been a lethal dose for Nate.

We got to the hospital and an insulin overdose gets your priority access.  We went back and after blowing out 2 IVs Nate's blood sugar was going up --- not down!  He was so nervous, so scared -- his adrenaline was pumping.  They finally got an IV in for a glucose drip and we waited for him to bottom out.  It never happened.  TWENTY THREE units of insulin and he never dropped below 190.

What in the world?

Was it the carbs?  Was it the adrenaline? Was it the combination?  Was it my sheer will wishing for my son to be ok? Is it possible to wish that hard for something?





On a different note --- isn't he the cutest boy you have ever seen?  LOVE . . . Super Nate!


We stayed at the hospital for about 5 hours to make sure Nate stayed safe.  We watched Big Hero Six and Ant Man.  Nate charmed all of the nurses and the doctor.  Here really is adorable.  Ian never left Nate's side.  I love the way he made him feel safe.

The 1st question the few people we have shared with have asked me is, if I was mad at Ian?

I was absolutely not mad an Ian.  It could have happened to me and he's my husband -- we are family.  I stand beside him, I support him, I love him.

That is what parents do--support, show grace, forgive hard, love hard, and stand united.



Just a Mom

I am NOT a doctor, nor do I play one on this blog.

I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.

The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.

Please consult your doctor if you have any questions or concerns about your health care options.

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