On Monday, April 9th Sophie was admitted to Children's Hospital of Dallas for the 2nd time in less than a year for her Crohn's Disease.
Looking back now I try make it less horrific than it was but it is still too fresh in my mind to be forgotten. Sometimes time makes it better, sometimes it does not and in this case I'm pretty sure it will stick with me for quite a while.
How did we get there?
On the 29th of February Sophie had her 3rd colonoscopy in less than 2 years --- you can read about it here. The days before the procedure required a special diet and fasting. During that time we took Sophie off of the steroids she has been on for 2 years and her Imuran (azathioprine). After the scope her diagnosis was officially changed from Ulcerative Colitis to Crohn's Disease and we made the decision to keep her off of steroids and Imuran and move forward with a new treatment plan of Remicade as soon as possible. Unfortunately, Sophie was diagnosed with Strep twice and then Scarlet Fever in just over a months time. Each illness required antibiotics which always helps tremendously but each time caused her to have C-Diff. Each time delaying further our being able to start her Remicade treatment.
So, without the steroids Sophie got very sick very fast. It's hard for me not to use a lot of curse words when I type out this post. So, I think I will start now. Some people believe that people that curse are uneducated and/or can't think of more appropriate words to use. I disagree, I believe sometimes situations such as these call for a lot of cursing 1) to portray how strongly I despise fucking Crohn's 2) to explain how truly fucking horrific this damn disease can be and 3) sometimes it makes me feel better just to fucking cuss! You have been warned!
Thank you, Alexis for this awesome picture!
By the time Sophie was admitted to the hospital she was having 12-15 bloody stools a day. Really, she was just pooping blood but there wasn't that much poop involved at that point. Along with losing massive amounts of blood, she was having sever stomach cramps and pain, was dehydrated and her hemoglobin level was 7.3 (if I remember correctly). It was fucking bad! She felt terrible and as her mommy I was just emotionally overwhelmed watching her suffer.
Jim left town Monday morning and Sophie was admitted that afternoon. Although friends and family offered to go with me to the hospital I thought sure I could handle it alone. I dropped Nate off with my parents and had a friend pick up Em from school and Sophie and I headed to Dallas. Just hours after arriving I felt overwhelmed. Emotionally and physically. The IV team couldn't seem to get the IV into her vien which caused a lot of tears and screaming, the constant trips with Sophie to the bathroom where I was literally holding her up on the toilet all while maneuvering her around with an IV, and heart monitor, plus feeling for the 1st time that I was totally alone with Sweet Sophie and her stupid, evil Crohn's Disease was pretty damn tough.
Luckily, starting on evening 1 friends and family started streaming in which was a nice distraction for both me and for Sophie. I literally would have not eaten or had anything to drink if it had not been for my friends and family bringing in food, diet coke and coffee for me. With it just being me and the Doodle I was pretty much at her bedside the entire time and could not or would not leave her unless someone else was there with her.
Instead of trying to remember each day I am going to import my Facebook statuses from each day as that was my main form of communication with everyone. Which saved my sanity because I could not have given each and every person their own update so here we go . . .