Wednesday, May 30, 2012
OmniParty Invitation
11:21 AM
Join us for an OmniParty
_________________________________________
Saturday June
2nd 3:00-5:00 pm
Top Golf
Allen
1500 Andrews
Pkwy
Allen, TX
75002
(75
& Stacy Rd)
Dealing with Illness
and Diabetes Management
·
Sick day
management
·
Hospitalization
protocol
·
DKA prevention
Guest
Speakers:
Suzanne Weldon
RD, LD, CDE (Adult) & Angie Burris RN, CDE (Pediatric)
Our purpose is to
create a community of people with diabetes, In order to allow patients
and families already on a pump or those interested in learning more
to:
· Make
connections
· Be supported &
support others
· Get
information
· Be inspired &
encouraged
·
Spread
the word about the benefits of pump therapy
Almost everyone who
has or deals with diabetes knows someone else with diabetes who could benefit
from an OmniParty. Make a difference and invite them to
come.
Sponsored by:
Type One Family
Network (TOFN)
The Houston Family will be there . . . will you?
Sunday, May 20, 2012
Day 7 - D-Blog Week - Wildcard Hero
10:19 PM
Click for the Diabetes Hero - Sunday 5/20 Link List.
Let’s end our week on a high note and blog about our “Diabetes Hero”. It can be anyone you’d like to recognize or admire, someone you know personally or not, someone with diabetes or maybe a Type 3. It might be a fabulous endo or CDE. It could be a d-celebrity or role-model. It could be another DOC member. It’s up to you – who is your Diabetes Hero??
Click for the Diabetes Creativity Wildcard Link List.
Creativity comes in all shapes and forms, so take this where ever it leads you. Write a diabetes poem. Create some D-Art. Record a vlog. Write a diabetes song parody. Scrapbook, collage, sew, knit, crochet . . . . use your favorite creative outlet to create a diabetes project!
It's kind of a combo or 2 for the price of one deal . . .
Obviously, it goes without saying that Nate is my Diabetes Hero and I've written about that many, many times. I honestly do not think I could have diabetes ----- I'm a total wimp! He is so totally amazing and strong and awesome and brave and super adorable!
See ---- total diabetes hero.
For the creativity part I thought I would share this video I made back in 2010 not even a year after Nate's diagnosis. If I made one today which I should have done for this post but didn't have the time. It would be to a much more upbeat song --- maybe . . . The Fighter by Gym Class Heroes or something bad ass like that.
Nonetheless, here is the super sad, going to make you cry video I made for our JDRF Super Nate walk team in 2010:
Enjoy!
Day 6 - D-Blog Week - Diabetes & Me
10:15 PM
Click for the Saturday Snapshots - Saturday 5/19 Link List.
Back for the third year, let’s show everyone what life with diabetes looks like! With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures. Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves.
Diabetes has changed me. I'm not sure if it has made be better or worse but I do know it has made me stronger.
_______________________________________________________________________________
I was going to just post the above picture but while looking for something else I found the below picture that I posted back in 2010 and it seems fitting for this post . . .
Friday, May 18, 2012
Day 5 - D-Blog Week - Diabetes Hurts
11:30 PM
Click for the What They Should Know – Friday 5/18 Link List.
Today let’s borrow a topic from a #dsma chat held last September. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.
To learn a lot --- I mean a whole lot about living with type 1 click the link list above and read some of the other blogs participating in D Blog Week. Lots & lots of good information being posted today.
There is a ton I would like to educate the general public on about type 1 but today I am just going to remind those not living with type 1 diabetes . . . that diabetes hurts.
I think people forget because Nate doesn't flinch when I check his sugar that there is still a little needle poking him until he bleeds ---- he may be used to it but that doesn't mean it doesn't hurt. And we do it 12-15 times a day. So far today we've actually done it 20 times!!
UGH --- picture proof. No judging on the WAY CRAZY numbers we've been having lately!
19 bs checks TODAY on the PDM and 1 on meter (see video below)
That's a lot of BS!
School days Nate gets checked more than other days
School days Nate gets checked more than other days
Our 90 day number is 1,111 on the PDM alone
Now that is really a lot of BS!
Also, very few people in my real life actually see Nate getting his pod changed. We change it every 2 - 3 days (sometimes more frequently) and he hates it. I've posted videos for my readers before of Nate's pod changes. They are hard to watch. After 2 years, 2 months and 18 days Nate still cries almost every single time we change his pod.
Diabetes Hurts.
The littles and I decided to make a couple of silly videos about checking Nate's sugar and then tonight was pod change night so we made a video of that as well.
SUGAR CHECK
POPPING BALLOONS
TODAY'S POD CHANGE
DECEMBER 2011 POD CHANGE
AUGUST 2010 POD CHANGE
I want everyone to know a lot of things about living with type 1 diabetes but I think the one thing I want you to remember today is that DIABETES HURTS. If you think it is just a physical pain you would be mistaken. That is my son, my baby in those videos. I do that to him every few days. Diabetes hurts Nate but it hurts me and the rest of our family too.
Keep Calm and Pod Change On . . .
Thursday, May 17, 2012
Day 4 - D-Blog Week - Give Me What I Want!
8:40 PM
Click here for the Fantasy Diabetes Device - Thursday 5/17 Link List.
Today let’s tackle an idea inspired by Bennet of Your Diabetes May Vary. Tell us what your Fantasy Diabetes Device would be? Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc. The sky is the limit – what would you love to see?
This is going to be really easy for me. There are a million things I wish we had to help deliver insulin, check and monitor blood sugar and/or something that would do both simultaneously while sending all of that data to my iPhone for me to review and approve.
Really though there is no imaginary device that can take the place of what I really want for Nate and for all of my friends living with diabetes. What I want more than anything is a cure.
If you know me at all you know that I don't sit around waiting for a cure, or blah blah blahing about a cure or most importantly filling my children's heads with thoughts of a cure coming soon.
But if I'm going to be honest ---- it really is what I want the most.
Wednesday, May 16, 2012
Day 3 - D-Blog Week - Room for Improvement
8:01 PM
Click for the One Thing to Improve - Wednesday 5/16 Link List.
Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at. Today let’s look at the flip-side. We probably all have one thing we could try to do better. Why not make today the day we start working on it. No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!
Well-- Well . . . since I said I totally rock diabetes yesterday I guess today I must confess to a few things that I could improve.
1) Changing of the Lancet --- Seriously cannot tell you the last time this happened. I know - I suck!
2) Washing of the Poking Finger --- I'm really bad about just wiping Nate's finger on my shirt and calling it clean. I know - GROSS!
3) Stressing over the Highs --- Oh yes, highs stress me out far more than lows. I get seriously stressed out and rage bolus the crap out of them. I know - Relax
4) Diabetes in the House --- I think the worst thing that I do is put Nate's diabetes on everyone in the house. I strongly believe that it is a family disease --- we all live with it but I sometimes put too much of it on Emma and Sophie. The only example I can think of right now is that Emma wants to get her ears pierced which I am ok with -- sort of. But, the latest trend is to get numbing cream from the doctor (EMLA) before going to get them pierced so they won't feel it. I say NO WAY! Nate's fingers get poked 12-15 times a day, he gets his pod changed every 2-3 days and Dexcom every 7-14. NO STINKIN WAY am I letting my daughters get numbing cream for an elective poking of the ears. I wonder if I would even care if Nate didn't have diabetes? I know - I'm a meanie!
I could go on and on but I think we were only supposed to focus on one.
Keep calm and D-Blog Week On . . .
Tuesday, May 15, 2012
Day 2 - D-Blog Week - I Rock this Job
8:16 AM
Click for the One Great Thing - Tuesday 5/15 Link List.
Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”. But today it’s time to give ourselves some much deserved credit. Tell us about just one diabetes thing you (or your loved one) does spectacularly! Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes. Nothing is too big or too small to celebrate doing well!
This weekend I was chatting with a friend's husband and while eating one my of super delicious chocolate chip cookies he asked me the following question:
Besides making awesome cookies, what other talents do you have?
I had no answer. I seriously don't really do anything well. I have no talents! I didn't play sports growing up, or dance or do gymnastics. I don't paint or draw. I really have no talents whatsoever. Sad, I know. I couldn't think of anything that I do well.
Then when I was trying to think of a diabetes thing that I do spectacularly for this post and it came to me.
That's what I do.
Diabetes.
I do it all well.
Don't get me wrong ---- I'm far from a perfect pancreas but I think I balance it all so well that most of my friends forget what all I deal with on daily/nightly basis.
I think they forget that I check Nate's sugar 12-15 times per day, they don't realize that I have to make critical decisions to his well being at every single check, I change his insulin pump every 2-3 days (hell, I think 1/2 of them think the pod just sticks on his arm with the sticky tape ---- FYI --- there's a very large needle that inserts a ---- oh good hell never mind!), I do a lot of math, I am accountable for everything that he puts into his mouth, the list goes on and on.
What I do --
What I do spectacularly is . . .
that I make it all seem NORMAL and OK and EASY and like it is NO BIG DEAL.
I'm actually quite pleased that I've gotten to a place after almost 3 years where I can make it all look easy.
It's not easy. It is hard. It is exhausting. It is frustrating. It is bloody. It is painful. It is total and complete suckage at times. But I am glad that I make it look easier than all of that.
Here's how it really is for me and for all of moms raising children with diabetes ---
A beautiful post written by my friend and fellow D Mom, Meri from Our Diabetic Life
We are called D Moms. D Mamas. Even Type 3's.
Sometimes we get a bad rap.
We wish it were us.
We are warriors.
We are D Moms.

Sometimes we get a bad rap.
~We're too "intense."
~We worry too much.
~We are overbearing.
~We over think.
~We over react.
~We over manage.
And I only have one thing to say about all of that...
You are probably right.
I want to tell you that if you are a parent, you can understand.
But that is not true.
I want to tell you that if you have diabetes yourself, you can understand.
But that is not true either...just as I will never fully understand your diabetic life,
you will never fully understand mine.
The only way you would understand what goes on in the swelly brain of a D Mama,
is if you were a D Mama yourself.
We are special. Chosen for our story, as you were chosen for yours.
We are fighters, and we will fight until our last breath to keep our children safe.
New technologies like fast acting insulin and insulin pumps provide keys for better management, but they also provide a clear and present danger at all times.
We have to be vigilant.
We look into the eyes of our children and we love them with a bright tenderness. We want more than anything for them to live a life free from restrictions, free from prejudice, free from complications, free from emergency rooms and hospitals.
We feel a responsibility well beyond any bounds of normalcy. We do not want to live a life of regrets. One day we will need to look into the eyes of our adult Type 1 Children and we want more than anything to say...
"I did my best."
The mothers of Type 1's spend every day racked with guilt. Every blood sugar number pierces our heart. We feel responsible for every high and every low.
An argument can be made that diabetes is responsible for every one of those numbers, but in our eyes...whether a reasonable notion or not, we feel they are a reflection of our efforts.
We may not always admit it to you, or to ourselves...but we take those numbers personally.
The A1C isn't called the mommy report card for nothing.
We do not sleep. That is a choice. We choose to keep a close eye on the numbers while the world takes a break. We don't take breaks. We know that waking up with a off number can domino to the rest of the day.
We know that pancreases sputter.
We know the soccer game from 5 hours earlier can affect the nighttime numbers.
(Yet we urge them to play.)
We know that Pizza can wreak havoc hours after consumption, and we know that Chinese food for dinner means a sleepless night for us.
(Yet we delight in serving them their favorites anyway.)
We know that diabetes never sleeps. That is why we don't either.
We know that a 200 can turn into a 52 in 30 minutes flat.
We know that on field trip days our children may spike with excitement, or bottom out from activity.
We know nothing is for sure.
So we check, and constantly ask our children how they are feeling...and we hover...watching every move...looking for changes in our children's faces...changes in their gait...tiny beads of sweat on the back of their necks...we know the signs of lows. We know our children better than anyone else.
We love hard.
We try hard.
We cry hard.
We hug hard.
We hope hard.
We stress hard.
We are hard on ourselves.
We are D mamas.
Don't judge us because we fret over the details. To us...Our Diabetic Life is all about the details.
We are 100% responsible for the well being of children we love more than anything on this blessed green earth.
No, we will not back off.
No, we will not calm down.
No, we will not stop making noise.
As mothers, we know that our children are special. Diabetes makes them stronger. It makes them resilient, responsible, amazing. It gives them a sense of humor. It makes them grow up too fast, and let's them spread their wings too slow.
We wish we could take away the pain.
We are warriors.
We are D Moms.
Hear. Us. Roar.

I love Ms. Meri ---- she does the making it look easy spectacularly well too! What can I say . . . I learned from the very best!
Keep calm and D-Blog Week On ---
DO IT!
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Just a Mom
I am NOT a doctor, nor do I play one on this blog.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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