Thank you, Reyna for honoring me today by sharing your wonderful post and helping educate my friends and family.
About the title...and yes, I am starting to notice a pattern... with my "about the title" nonsense. I will try to stop after this post. So, back to "about the title"... I sooooo wanted to use the "F" word, but thought of my poor mother and refrained. Love you Mom.
A typical day looks like this:
(Keep in mind this is everyday...always...there are no breaks...EVER. There is no "magic" people. Managing diabetes takes an incredible amount of work)
7am - Blood Sugar check; weigh cereal, measure milk, add up carbs...and then program the numbers into the pump.
9am - Blood Sugar check; read nutrition label on a snack cracker pack for the carb count...and then program the numbers into the pump.
11am - Blood Sugar check; prepare lunch...bread , measure out jelly using a tablespoon, peanut butter and measure milk...add up carbs...and then program the numbers into the pump.
2pm - Blood Sugar check (if the number is over 200...program the pump to deliver more insulin).
5pm - Blood Sugar check; measure soup, measure milk, add up carbs...and then program numbers into the pump.
7pm - Blood Sugar check (if the number is over 200...program the pump to deliver more insulin).
9pm - Blood Sugar check
11pm - Blood Sugar check
3 am - Blood Sugar check
*and you wonder why we are fucking crazy...
This is a schedule assuming all is going as planned; it doesn't take into account activity, illness, growth, holidays, vacations, etc. Anything and everything can throw off the blood sugar numbers, especially when you are dealing with a young child with type 1.
Some fears we encountered when taking the "pumping plunge"...
When making the decision to pump, I was worried about my exuberant in all that he encountered 3 year old boy being "hooked-up" to something 24/7/365. I didn't like the thought of it. I was worried that he would get his tubing caught on drawer knobs, door knobs, any sort of knob. I worried about the "visibility" of his condition to the general public by wearing the pump. I worried about DKA from an experience I had in my role as an ICU RN. I can honestly, frankly, and truthfully tell you that I have found all of the above fears unfounded. I think in the 4 years that Joe has been pumping he has only lost 1 site from catching the tubing on a knob. The other fears haven't even been realized. Not once.
Our pump of choice...
We chose the Animas Pump for Joe. I decided on it because of the incredibly small basal rate increments that it could be adjusted by (0.025). Joe was extremely sensitive to insulin at diagnosis and I felt that this was the "go-to Pump" for a little guy. In working with a few different pump brands, I feel the Animas pump is the most intuitive. Admittedly, I am biased. The L.E.D. screen is the bomb! Animas was the best choice for us. Joe has been pumping for four years now. Our "contract" is up with Animas. I plan on researching Medtronic and Omnipod over the next few months to keep my perspective "fresh". Although, I must say it would take a lot of flashy shit for me to switch at this point. Animas has had our back from the start... I am an Animas girl through and through.
Here are some posts that I plan on re-reading: If you have a post that should be included please comment with a link and I will add it. ThankS!
- Tracy from The Superhero And The Princess about her "Favorite Things" discusses the Animas Ping.
- Wendy from Candy Hearts posted an extremely comprehensive post about the Animas Pump here.
- The Princess and the Pump's Hallie is also an Animas girl at heart, she posted here.
- From Houston,We Have A Problem, a wonderful post about the "tube-less" Omnipod written by Laura. (Oh - Hey - That's Me!)
- Lorraine at This is Caleb wrote a fantastic review of the OmniPod here.
If you are just starting the decision making process on whether or not to pump, Donna from The Sugar Kids posted about the decision making and the pump start-up transition here.
Pump Therapy for Children: Weighing the Risks and Benefits
Links to Insulin Pump Information
A day-in-the-life of dispelling the myths of "magical pumps" and making informed decisions.
Thank you again, Reyna!!
Very helpful and intersting for me to read, since we're going through the pump change now...I keep thinking it's a lot more work than I thought. In a lot of ways, MDI is easier -- give and take...Roselady
I was talking to a Child Health Nurse a week ago. I was talking to her how hard it is to have a CWD but she just said there are these machines now to deliver insulin that are really good. a)Like I had never heard of a pump AND b) they magically deal with the diabetes.
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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