It's time for me to come back to my blog. I've missed it and I have a lot to write about ---- so much to share but my heart is still heavy from the loss of Eilish, a 13 year old little girl that passed away in her sleep last week. Eilish had type 1 diabetes and is believed to have passed away from Dead in Bed Syndrome.
For a mom it is very hard to hear about any child losing their life. I. Cannot. Imagine.
I've been staring at the screen for hours and really cannot find the words --- I'm at a loss.
I don't worry any more or any less about Nate's diabetes because of this passing. The fear has always been there. So many people are not aware of the of what goes on in the life of a mom with a child with diabetes.
The fear, the worry, the exhaustion, the schedule, the math, the counting, the dosing, the never-ending work.
The hard part is knowing that you can do it all right. You can count every carb, weigh ever gram of food, accurately dose insulin, and repeatedly check blood sugar and still this disease is never really in your control.
Last week I did not cry at the news of Eilish's passing. Since Nate's diagnosis I have read about several children passing away from the complications that are associated with diabetes. I somewhat stayed away from the blogger community and kept to myself. I think this was my way of ignoring the situation in an attempt at not having to deal with the reality of an all too real situation.
Last night I stepped back in and have been completely blown away by the compassion, grief, and overwhelming sorrow that I am now feeling. My tears are flowing freely for a little girl that I have never met. I cry for Eilish, her mother, her father and for her little sister, Ella. I also cry for Jesse Alswager's family, for Alec Temple's family, for Trent Nicholson's family, and Chantal Driver's family.
You see I am not looking for answers --- I know that diabetes does not play fair. I know these parents did everything right and still diabetes took their children. I know that this very easily could be my family one day. I live with that reality every day as do all of the other parents living with diabetes. I only hope that all of the families that are struggling with the loss of their children know that there is a very large community thinking about you, loving you and lifting you up every single day.
The outpouring of love and support has been amazing -
I understand your need to insulate for a while after this tragic news. I don't think I've fully let it in, myself. I can't go there. It doesn't necessarily make me more concerned about Grace, but I HAVE been checking her more frequently overnight this past week.
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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