Well, until I received an email response from Nate's former endo late last night. I am very impressed that Dr. Tannin took the time to respond and I think it is very thoughtful of her to respond and wish us well with Nate's future treatment.
Here is the letter that I recieved last night - - - in its entirety:
To be honest it is 12:30 AM and I am modifying this post because - - - well, because this is my blog and I want to! I deleted a paragraph addressing Dr. Tannin's paragraph in her letter about the tight blood control in toddlers. I didn't address it in my response to her so to be fair I took it out of the post.
Again, I think it was very nice of her to write and wish us well.
We have moved on from CMC and so far we are very pleased with Nate's new medical team. Nate has 1 doctor, 1 nurse and 1 CDE and I believe this system will work better for Nate's long term care and work better for our family.
i find this really good and very honestly doubt that it went thru legal. Us lawyers would've made a lot more clauses in this short letter. Either way, nice to leave on a note knowing that they are considering your issues and hoping to make changes.
I personally have told you that within the new group you choose, I've seen three different doctors and two different educators due to pregnancies or the difference between me now and me as a teenager. Even within the excellent team, I can get very different information. You have to click with your team on a number of different levels.
Best wishes. You really are doing fabulously.
Wow. I have been OUT OF THE LOOP!
I just went back and read your letter, and the comments that followed. Looks like it was received....
OH, the woes of lows...especially for these little people!!!!
After moving from MD to AZ, we rec'd conflicting information about managing a toddler. The only consistency we found was that little brains NEED glucose...as a result, we targeted an A1c between 7.8 - 8.5. When she was nearing her 5th birthday, we targeted an A1c in the mid-high 7's and, since shortly before her 6th birthday, we've been targeting the high 6's/low 7's.
Addy has that horrible history of HORRIBLE lows....it scares me beyond comprehension...what permanent damage those passing out, head hitting, gut wrenching lows could have done to her little developing brain :(
Heres the thing. Toddlers with diabetes are a rare breed...and they need attention from someone who is consistant...and knows the history. And it helps if this person is a doctor...not a nurse. I've had newly diagnosed as a baby...a toddler...and a preschooler...and I can tell you that the baby is FAR AND BEYOND a different world. The worry is ten fold. And to be put on hold...or worse...not even being called back, well...that is wrong on SO many levels. I'm not condemning the place you are leaving...I'm just saying I've been there. Families with babies that are newly diagnosed should have one go to person. And that person should be the cream of the crop. Just sayin.
I totally agree with what meri said and yes I had a 6 yr old dxed and then me I was dxed at 16 . the dr was guessing that I had been a t1 quite some time before that and my son as well since some drs missed things they should have picked up but did not , none the less . yes issues are totally different with babys , toddlers and teens and adults . I would ? a medical team that did not think so . God bless you and your family I keeping all of you in my prayers . I pray that sophie comes out of this just fine .
I am happy you got a response and that you were heard. I also love that they read your blog, cause that means that they may begin to understand your story and all that you do for Nate. I am also thrilled that you moved on. It is what it is. The team you have now for Nate sounds fabulous.
As for the comment about toddlers and the D, well, you know how I hate generalizations, so I dislike them even more when they come from medical professionals. Every child with D is a story of a child with D.
Just a Mom
I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.
The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.
Please consult your doctor if you have any questions or concerns about your health care options.
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