Wednesday, July 5, 2017

Camp Sweeney - July 5, 2017

Nate the Great Update ... 
Last night was the Camp Sweeney luau and fireworks for the 4th. 🇺🇸🌺🌴 ---- I love these pictures of Nate. I adore his sweet smile and the fact he's wearing absolutely none of the clothes I packed for the luau! 😂 -- As a matter of fact the boy he's hanging out with is actually wearing the shorts I packed Nate for the luau.  🤦🏻‍♀️
Jim and Ian assured me --- it's fine, it's fine that he's wearing his bathing suit and a random red shirt (I'm fairly certain I didn't pack) to the dance. 🕺🏻💃
I'm doing better! Thank you all for all of your support! I appreciate all of your sweet words and understanding. Only a few tears today. I think I've now entered the guilt stage. I'm getting a much needed break from diabetes but the fact Nate will never get to take a break makes it hard for me to enjoy it. 
But! I'm sleeping. I slept last night. And after going on a 3 mile run, and then a 13 mile bike ride today --- I enjoyed a lovely nap in the pool on the poop 💩 emoji floatie  ☀️🦄
Tonight I logged on to the live feed of the flag lowering ceremony and spotted Nate wearing a different shirt but the same shark bathing suit he wore to the luau last night.  #OhLort -- And tonight they're going to Jumpland. Boys! I imagine he's loving the heck out of the fact that I'm not nagging him to put on clean clothes! 👊🏼😷😂












Tuesday, July 4, 2017

Camp Sweeney - July 4th, 2017

Yesterday was a bit better for this momma! I did a little shopping, got a pedicure, and then kept super busy by cleaning house! Tears flowed often for no apparent reason and my heart felt heavy but all in all much better than Sunday. 
I started cleaning the heck out of Nate's room. Why does it always smell so bad? I washed sheets, blankets, and comforters so it's already smelling better. Something about a smelly boy and his stinky dogs sleeping in there may have been the culprit! Or maybe all of the dirty socks I found 'hidden' behind his bunk beds. 🤢
After so much cleaning, I guess in the next 3 weeks I'll finally figure out which boy in the house tends to lean left! 😷 💦🚽
I love the Camp Sweeney 365 app! Early evening I tuned in for the flag lowering ceremony and caught a few glimpses of Nate! Then just before I went to sleep they uploaded some pics and I found 2 sweet smiling photos of my boy! Day made! 





Monday, July 3, 2017

Camp Sweeney - July 3, 2017 - Journaling MY Journey

Journaling my journey -- I've always blogged my way through the tough days, and I'll soon add all of these posts to HWHAP. It's just so easy to share here 1st. 
Yesterday was tough! I mostly think of myself as a tough, fierce, warrior mom. The littles and I have been through a lot, we endure a lot with diabetes and Crohn's and just life. We are all stronger for it. But yesterday my opinion of myself changed dramatically. 
I don't helicopter, I don't hover, and I really don't need to know what the kids are doing every moment when they are spending time away from me. When they are with their dad, I rarely chat with them. I really believe they should be with him, enjoy their time with him, it gives me a little break, and I trust him completely. 
But! In actuality, I'm still somewhat in control. Not of the kiddos but of Nate's diabetes. When Nate is w his dad, Jim runs the diabetes show, but I can still see every blood sugar, every trend, and we often work together, brainstorm, and problem solve. 
Diabetes encompasses me. It does! I eat, sleep, and breathe diabetes. That's not really an exaggeration. We count carbs, we dose insulin, we figure out what each meal, snack, bite will do to his blood sugar. He sleeps, I diligently watch his blood sugars at night, I test, I treat lows, I fight highs .... there's no sleep for me. Ok, I may not actually breathe diabetes, but if you live this life, then you know the smells of diabetes. The band-aid smell of the insulin, the sweet, fruity smell of ketones, and the strong, clean smell of alcohol wipes!! 
Nate's diagnosis was one of the hardest things that I've lived through. There's no cure. There's no end. There's not even any light at the end of the tunnel. It goes on and on and on. So, I've embraced it! I've read, I've listened, I've studied, I've researched, I work tirelessly to keep him safe, healthy, alive. It's what I do and who I've become. 
Yesterday every part of that was taken away from me. That sounds dramatic. #dramaqueen More accurately, I left that part of me at Camp Sweeney. Oh, I know he's safe, he's having an amazing adventure, it's going to change his life! I know all of this. I do! And I'm so excited for him, but this is about me! 😂
After spending a relaxing day in the pool, then eating a wonderful dinner (prepared by sweet friends), it was time to settle in, shower, get ready for bed. I suppose the silence is what finally triggered it all ... there were no sounds ... no beeps, no alarms, nothing. There were no smells, no insulin dosing, no carb counting, no alarms for me to set. I was preparing to actually sleep without my phone by my head --- all alarms were off. That's when it struck me --- I had a full blown, can't breathe, chest pounding, fall down in the shower, crying my face off panic attack. It was completely awful.  Ian Ivory had to come into the shower and after sitting with me (soaking wet), letting me cry, he then spoke truth to me --- "Nate is fine. You will be fine." He also validated my tears .... this is the 1st time in 8 years that someone other than myself is completely in control of my son's life. This is huge. For both of us. 
It took me a while to get to sleep, but I slept. I woke a few times but was able to get back to sleep. I woke up this morning feeling better. Calmer. It's fine. It's fine. Everything is going to be just fine. 
Plus, my niece, Krysta Lynn Hamill found these pics of Nate smiling, happy, and alive, so there's that!!! ❤️
http://www.houstonwehaveaproblemblog.com/p/nates-story.html?m=1






Sunday, July 2, 2017

Camp Sweeney - July 2, 2017

We did it! 
We just dropped Nate off at Camp Sweeney for 3 weeks.  #OhMyHeart#ItsFineItsFine #YetiMe
He was super quiet, a bit overwhelmed, and nervous but his 'big brother', Austin was great and stayed w/ him while Jim and Ian Ivory dragged me out of the cabin kicking and screaming. 😭
I'm super emotional but so excited for #SuperNate














Just a Mom

I am NOT a doctor, nor do I play one on this blog.

I AM a wife.
I AM the mom of 3 wonderful children.
I AM my son's pancreas.

The information provided on this blog is from our personal experiences with Type 1 diabetes. Because something works for us does not mean it will work for you.

Please consult your doctor if you have any questions or concerns about your health care options.

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