tag:blogger.com,1999:blog-8100126567446754858.post2113322421130464288..comments2023-09-24T11:00:00.484-05:00Comments on Houston . . . We have a Problem!: Ulcerative colitisUnknownnoreply@blogger.comBlogger25125tag:blogger.com,1999:blog-8100126567446754858.post-34687954542915250122010-06-14T20:34:46.212-05:002010-06-14T20:34:46.212-05:00I'm so sorry you have to deal with this. I...I'm so sorry you have to deal with this. I'll keep you all in my thoughts - especially little Sophie. (That was my grandmother's name!)Karenhttps://www.blogger.com/profile/03836215891806148229noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-37064714447896029272010-06-13T19:20:04.051-05:002010-06-13T19:20:04.051-05:00Just wanted you to know that I'm still praying...Just wanted you to know that I'm still praying for you and Sophie. I pray that doctor's will figure out how to clear up all her symptoms quickly.<br /><br />You are a great mom. Sophie is blessed to have you in her corner. : )Tracy1918https://www.blogger.com/profile/11192789929262055057noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-3451324691163388852010-06-13T16:08:16.476-05:002010-06-13T16:08:16.476-05:00Oh Laura, I'm so sorry to hear about Sophie...Oh Laura, I'm so sorry to hear about Sophie's diagnosis! Hopefully the UC won't develop into Crohn's. Neither diagnosis is a good one, to be sure, but maybe the UC will be easier to manage. My dad has Crohn's, and like Amanda, who commented above, he is now on Remicade to control his symptoms. Certainly not a cure but it does ease the pain some. My folks would probably be happy to talk to you about this diagnosis as well as their experiences when I was diagnosed w/T1 at 21 months. Hang in there!Kirstennoreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-14854318111442717542010-06-13T13:29:59.069-05:002010-06-13T13:29:59.069-05:00I am so sorry to here about your daughters diagnos...I am so sorry to here about your daughters diagnosis. I cannot imagine how you are all feeling now. Fingers crossed that all will settle back down to 'normal' and you all have a wonderful summer. Hugs to you all.FeltFinlandhttps://www.blogger.com/profile/16752112973307523571noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-35160459849539092792010-06-13T10:20:16.622-05:002010-06-13T10:20:16.622-05:00Oh Laura - I'm so sorry! It's just not fa...Oh Laura - I'm so sorry! It's just not fair, is it? I know you'd take this from her in a heartbeat if you could. Your family is so lucky to have you. I know it must be overwhelming right now but I also know that YOU will handle this with the grace and strength and endurance that you have Nate's D. We will continue to pray for you all and pray that you find successful treatments for Sophie that enable her to have a very healthy, very normal life. ((hugs)) to you, sweet friend!Hallie Addingtonhttps://www.blogger.com/profile/11331775099035220917noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-9650195505387429942010-06-12T16:39:24.434-05:002010-06-12T16:39:24.434-05:00You have a lot on your plate! I am so sorry for So...You have a lot on your plate! I am so sorry for Sophie's diagnosis. <br /><br />I was originally dx with Ulcerative Colitis and later Crohn's. I do have to say that the first couple of days as I read about all of the things that can happen I was soooo depressed. But, even though I have been considered a severe case, most of those horrible things have never happened to me (fistulas, resections, etc.)<br /><br />I have had some bone thinning as a result of steroids, but I take calcium supplements in addition to a prescription and have regained bone mass.<br /><br />I was pretty sick after my first two babies - sick enough to be hospitalized the second time - but the disease never endangered my baby and was easy to control while I was pregnant. <br /><br />After I was hospitalized I started a drug called Remicade that has been life changing for me. It is like I don't even have Crohn's Disease any more. I think it is more of a last resort when other treatments don't work, but it has been amazing for me and for my sister, who has a dx of Ulcerative Colitis. <br /><br />I hope I'm not overwhelming or boring you, I just wanted you to know that I have been able to have a pretty normal life and have been able to have children. I know that doesn't take away the sorrow of seeing your baby girl suffer. You and your family are in my prayers (I have a little Sophie too).Amandahttps://www.blogger.com/profile/10314630344481444551noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-48799320195834990792010-06-12T13:58:14.440-05:002010-06-12T13:58:14.440-05:00Thanks, Ladies - - - your words, thoughts and pray...Thanks, Ladies - - - your words, thoughts and prayers mean a ton!LaLahttps://www.blogger.com/profile/17278430665049354027noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-80640698411363424682010-06-12T11:59:53.223-05:002010-06-12T11:59:53.223-05:00Laura remember when I was dxed with the big d it w...Laura remember when I was dxed with the big d it was a considered a death sentence , well I am still here and healthy as a horse and Sophie will be too . I am keeping your family and dear sophie in our prayers . stay strong and they may have gotten something wrong so just hang in there . God is good and all will be okay . Im keeping you guys in my prayers .phoneladyhttps://www.blogger.com/profile/15941892184117571313noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-71334725800266941772010-06-12T06:41:45.238-05:002010-06-12T06:41:45.238-05:00Love to you and yours Laura. Thank you for the in...Love to you and yours Laura. Thank you for the informative post and I have been thinking of you guys over this past week.<br /><br />XOXOAnonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-52847727580383910162010-06-12T00:19:38.567-05:002010-06-12T00:19:38.567-05:00Much love you you....what an incredible blessing y...Much love you you....what an incredible blessing your children have in you for their mother.<br /><br />While, I feel a sense of relief that the "C" word wasn't confirmed....I'm still just heartbroken that sweet Sophie is dealing with this mess. <br /><br />Please keep us in the loop. I imagine this will bring and entirely new perspective to your blog...along with many new friends to help you walk that road.Wendyhttps://www.blogger.com/profile/05977082081187891403noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-1141468294412329772010-06-11T21:05:30.082-05:002010-06-11T21:05:30.082-05:00Our kids and their health is something that is so ...Our kids and their health is something that is so hard to let go of and trust God with. From what I have learned from your blog, you have an amazing family and this little bump in the road will not keep your beautiful little girl from growing up to be nothing short of amazing! I'm continuing to lift your family up in prayer as normal takes on a new look yet again.Heidi =)https://www.blogger.com/profile/03050944024956869185noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-50270455609550548562010-06-11T20:18:38.461-05:002010-06-11T20:18:38.461-05:00We are sending lots of love your way Laura. You ha...We are sending lots of love your way Laura. You handled D- your family will handle this too. We will all be here to support you. <br /><br />AprilApril Annhttps://www.blogger.com/profile/01507843616836131578noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-86588333240335520752010-06-11T20:09:19.909-05:002010-06-11T20:09:19.909-05:00Big hugs to you Laura - I am so sorry. I am sendin...Big hugs to you Laura - I am so sorry. I am sending prayers and healing thoughts your way. Love to Sophie and to you. Hang in there.Pennyhttps://www.blogger.com/profile/11137611120689810820noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-5171059151236852842010-06-11T17:23:24.390-05:002010-06-11T17:23:24.390-05:00Dang Laura...seems like so much for a little one. ...Dang Laura...seems like so much for a little one. Yet....we know how it goes. You will be amazing and Sophie will plug her way through this like a champ. LOTS of ((HUGS)) and prayers being sent your way as you begin another journey!!Amyhttps://www.blogger.com/profile/04842687454353803647noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-42667283723416158102010-06-11T17:21:58.842-05:002010-06-11T17:21:58.842-05:00Big hugs mama Laura. Like mentioned before, it can...Big hugs mama Laura. Like mentioned before, it can be managed. It is all so overwhelming right now. Make sure you get the rest you need and take care of yourself.<br />You are in our prayersalixhttps://www.blogger.com/profile/00531035319968791717noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-38260623207628033032010-06-11T17:07:11.609-05:002010-06-11T17:07:11.609-05:00Oh, Laura, I'm so sorry! I hope that a diagnos...Oh, Laura, I'm so sorry! I hope that a diagnosis brings treatment and I hope the treatment brings relief to your beautiful little Sophie. I'll continue to keep you in my thoughts and prayers!Heidi / Jack's Packhttps://www.blogger.com/profile/13777565610491587857noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-22875632328190909542010-06-11T16:55:46.264-05:002010-06-11T16:55:46.264-05:00Oh I'm so sorry!!! Poor little Sophie!!! I'...Oh I'm so sorry!!! Poor little Sophie!!! I'll pray that you guys can find some medications that work well for her little body and that she wont have to deal with many (if any!) flare ups!!!<br /><br />My sister started out with ulcerative colitis and "chose" to have her entire colon removed and most of her intestines and then had a later diagnosis of Crohns. She works full time is married and has been able to lead a very "normal" life in spite of these rotten diseases and I know Sophie will too! <br /><br />Hang in there!!! (((Hugs!!!)))AjsMommy82https://www.blogger.com/profile/05254080960339217377noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-89808498613499620842010-06-11T16:02:18.269-05:002010-06-11T16:02:18.269-05:00I'm so sorry, I don't even know what else ...I'm so sorry, I don't even know what else to say. I'll be keeping you all in my prayers and hoping there is better news on the horizon for her condition. I'm a phone call away if you need anything. <br /><br />Hugs to all of you.2 Green Eyed Girlshttps://www.blogger.com/profile/13459800211600765017noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-67717531414648617152010-06-11T15:45:30.991-05:002010-06-11T15:45:30.991-05:00I am so sorry I will keep your daughter and family...I am so sorry I will keep your daughter and family in my prayers.Crystall Younghttps://www.blogger.com/profile/06697015361657656863noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-31501513222857844312010-06-11T15:34:22.711-05:002010-06-11T15:34:22.711-05:00I am so sorry, I will continue to hold your family...I am so sorry, I will continue to hold your family in my thoughts and I hope that you also get some much needed sleep my friend.<br /><br />Hang in there and we are all here for you.conniehttps://www.blogger.com/profile/18365385305270234889noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-13096832334590623802010-06-11T15:30:25.713-05:002010-06-11T15:30:25.713-05:00I'm exhausted reading that. So much to take i...I'm exhausted reading that. So much to take in!! I'm so sorry Laura...I'll pray that they will find a successful treatment plan for your Super Hero Sophie.Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-64630054935181675842010-06-11T15:30:03.788-05:002010-06-11T15:30:03.788-05:00Hi Laura,
I'm so sorry your family is going th...Hi Laura,<br />I'm so sorry your family is going thru all this. I'm glad you're going to get some rest. My Dad was diagnosed with ulcerative colitis when he was a teen, and I'd love to share all that our family has learned thru the years that help manage it. The good news is that it's a manageable condition. Diet is really important. When my Dad really isn't feeling well, he eats lots of arborio rice, pasta, and potatoes with olive oil or butter and parmesan. The brat diet is great for flare ups. It's very soothing on the stomach. Baked apples are also great. I'd be happy to talk to you, and my Mom who manages my Dad's colitis like a pro, would be happy to talk to you too. Best wishesAlex's Mommyhttps://www.blogger.com/profile/11862367022677425818noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-35581349876896972352010-06-11T15:03:12.535-05:002010-06-11T15:03:12.535-05:00Continuing to send prayers your way. In the mean ...Continuing to send prayers your way. In the mean time, hang in there and try to get some rest. - MoFive Bears A-Blogginghttps://www.blogger.com/profile/11797241538907067302noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-68982675067450425402010-06-11T14:53:50.814-05:002010-06-11T14:53:50.814-05:00:-(:-(The Crazy Pancreashttps://www.blogger.com/profile/13771025937911035003noreply@blogger.comtag:blogger.com,1999:blog-8100126567446754858.post-41859797915226936422010-06-11T14:37:26.751-05:002010-06-11T14:37:26.751-05:00Ugh, I am so sorry. You must be exhausted. I pra...Ugh, I am so sorry. You must be exhausted. I pray that they can find a treatment that works for little Sophie and she will start at least feeling better soon.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.com